As cancer cells were found in a sentinal lymph node that was removed during my first lumpectomy and no other lymph nodes were removed during my second lumpectomy. I'm terrified that instead of there "rogue cells" to be destroyed by the chemotherapy that instead when I have the CT scan prior to starting chemotherapy, that they will find it has spread. I've waited a long time between when I first went to my doctor and my "urgent" referral for a mammogram that took over a month. My initial diagnosis was quick then I waited ages for my lumpectomy with lymph node removal surgery. Then only a cpl of weeks before I was back in for a second one. Then waited nearly 6wks for the results and the news that chemotherapy is now a treatment option. I then waited over 4wks for my initial appointment with the oncologist. Understandably I can't help but think had they been a bit quicker I wouldn't need chemotherapy at all and it would have just been the radiotherapy mentioned when I was diagnosed. I was told chemotherapy would start in 3-4 weeks if next week I agree to having it. That's another month added on. I've been on letrozole since first being diagnosed, but the fear it's spread is constantly on my mind

The oncologist never gave me stats on things like the chances of it having spread, or the chances of it coming back or anything like that. Most of what she said i had to ask her to repeat because I couldn't understand what she was meaning. Even them i couldn't get my head around it, it made no sense to me. It was literally like she was reading off a script infront of her and if i asked a question it totally through her off.

I emailed my BC nurse as soon as i got back home, but she's not replied and that was 2 days ago. I feel like I'm literally being left to rot 

As I noticed your posts went unanswered and that you're new here I wanted to stop by to welcome you to the forum, Cryptchick.

I'm sorry to hear about your breast cancer diagnosis and the challenges you're facing with your treatment. It sounds like you've been through a lot, and it's completely understandable to feel scared and frustrated.

It's good that you're advocating for yourself by reaching out to your BC nurse and seeking answers to your questions. If you continue to feel unheard or unsupported, consider reaching out to another member of your medical team or seeking a second opinion.

Hopefully, other forum members who have had a similar experience will come in shortly to talk with you and offer some insight and advice. Until then, if you think that it could be helpful to ask some questions to one of our nurses, please know that the team can be reached on this number 0808 800 4040 Monday - Friday between 9a.m - 5p.m. 

Stay strong, and don't hesitate to speak up for yourself.

Wishing you strength and courage as you move forward with your treatment,

Renata, Cancer Chat Moderator

Hello Cryptchick,

I was diagnosed with lobular breast cancer, grade 2 on January 4th and I had a lumpectomy and 2 sentinel nodes removed yesterday. My consultant told me that breast cancer tends to grow slowly and few months should not make a difference. I had ultrasound twice in a space of 1 month and there is no difference in size. My current treatment plan is radiotherapy. I will have a meeting with my surgeon in 3-4 weeks when he will discuss the pathologist’s result with me. All scans including MRI didn’t show that presence of cancer in lymph nodes but it is not 100% certain. If cancer cells are found in lymph nodes, then I will be offered lymph node clearance and further CT scan. My treatment plan may change.  The waiting is awful and you are not alone. Each of us has different experience with treatment. Many found chemo tolerable and recover well afterward. Try to stay positive, I know it is easy to say. But you have been through two lumpectomies. Keep fighting xxx

Thank you so much Renata ️

I was told the same my lump was 44mm and didn't change from the initial mammogram/ultrasound/mri

My lymph nodes showed clear in the MRI but once I had two removed one showed cancer cells. That's what worried me. The possibility of secondary cancer from the length of time since my first lumpectomy to when I eventually start chemo.

It looks good for you if no cancer in the lymph nodes, possibly will only be radiotherapy. I only had two lymph nodes removed one showed cancer cells, but was told that the radiotherapy would sort any possibly lingering ones.

But that won't be until end of the year. If all goes well with my CT scan and my treatment options don't change. I won't be finished chemo until October

I think your diagnosis is similar to mine apart from the cancer cells in a lymph node they removed x

I will know in 3-4 weeks if there is cancer cell in the 2 sentinel nodes that were removed. If there is, then I will be offered lymph node clearance. I would rather have both chemo and radiotherapy if that’s the case. It is what it is. The nature of disease and the system we have. We have little control over them. I try to stay calm and deal with good & bad news when it is presented to me. Keeping busy and have people with positive outlook in life around me helps. I will be thinking of you x

I am with you 100% I have only mt my oncologist in person once and she is like a robot reading from a script. I've not met ant BC nurses only spoken to a support worker. I refused chemo as it wan't really explained to me, and I was told I couldn't have it without having more vaccs which compromise my immune system even more, talk about being out in the cold. I am now on further meds and have just had an ibandronic acid infusion with further meds I wasn't expecting. I have a phone appointment with a stranger on Friday will see how that goes.