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Leukaemia ALL

Mrct1974
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I had ALL 35 years ago. Having had chemotherapy, radiotherapy and a bone marrow transplant at hospital I have lots of advice, experience and help to give. If anyone ever needs a chat please get in touch, don't suffer alone.. there is always someone to talk to.. its hard going but stay strong.. 

Parents
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    Hi Mrct1974

    Our son [21]was diagnosed with ALL ,T cell in August 2021.

    We have worked through the treatment to date and now have 11 months of maintenance to face.

    Our son is struggling with length of the treatment and is deciding to cease.

    He is basing his decision on his own research and concludes the continuation is unnecessary as he believes the current protocol is out of date with other countries his research suggests the extra time on boys makes no difference to the outcome 

    We have asked him to agree to hold off on this decision while we do our own research 

    Any help/advice as to where we can build up our knowledge is appreciated,

    The protocol we are working on is ALL protocol UKALL 2011

    Ray and Clare 

Reply
  • Offline

    Hi Mrct1974

    Our son [21]was diagnosed with ALL ,T cell in August 2021.

    We have worked through the treatment to date and now have 11 months of maintenance to face.

    Our son is struggling with length of the treatment and is deciding to cease.

    He is basing his decision on his own research and concludes the continuation is unnecessary as he believes the current protocol is out of date with other countries his research suggests the extra time on boys makes no difference to the outcome 

    We have asked him to agree to hold off on this decision while we do our own research 

    Any help/advice as to where we can build up our knowledge is appreciated,

    The protocol we are working on is ALL protocol UKALL 2011

    Ray and Clare 

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