Thanks very much  for the response. So far I have been given 4 weeks bicalutamide and first prostap injection next week. The urology consultant led me to believe I’d have these every 12 weeks but no indication for how long before radiotherapy. maybe I’ll get to know more next week. I’ve not seen an oncologist yet but presume that’s the next step. 

I’m lucky I guess in that I’m pretty fit already as I walk a lot and am retired so I’m not going to find fatigue will interfere with work. The rest of it well who knows.  Was just about to plan a holiday with some friends but with the uncertainty as to timing am having to put that on hold sadly.  Health is more important although holidays are as well!!

Hi, every three months with prostap injections is what most have and are usually on it for at least 2 years. Radiotherapy should start in about 6 months and you will see your oncologist about  months before that for scans an to plan treatment, then 2 weeks before RT you may get your tattoo's done, depending on what RT treament you receive.

Eddie

That’s really helpful thank you. The urologist only talked about prostap prior to radiotherapy, didn’t mention anything about it continuing. I’d have thought that would be an oncology decision. I’ve been referred to the consultant lead of the multi disciplinary team but not been seen by him yet 

my daughter works for a gp practice and she says they have loads of men on prostap. Her gp’s give them but I don’t know if mine does.  So for now it’s wait and see. I’m pretty sure I’ll feel more settled when I have a plan and timeframe for everything. It’s the uncertainty that gets to you. Will have to learn how to be a patient patient!!

Your urologist and oncologist will be working closely on your treatment plan, though once RT starts your oncologist will lead on decisions, when you meet you MDT make sure you get your cancer nurse specialist's CNS contact number as she will be part of your MDT and by far the easiest to contact. If you want to have your Prostap injections at your GPs ask the nurse at urology next week, that's where i have mine, last one September.

Eddie

Thanks for that. I’ll mention it next week. It’s a bit of a drag to the hospital and much easier to have it at gp. One thing that’s good is that the hospital where the urology department is, is pretty much next door to the hospital where the cancer treatment takes place. We’re very lucky with the specialist hospital 

One thing about the radiotherapy department, you will find the radiographers the friendliest, and most helpful staff you have ever met, they will answer any questions you have and if they can't will find someone who can, If you feel a little off in any way let them know, my oncology hospital was a hour away and parking was so bad you had to allow an extra hour, luckily i found a cancer charity there that transported patients to and from treatment

Eddie

A friend of ours had radiotherapy for breast cancer last year and couldn’t praise them highly enough. We have the same parking issues at the cancer hospital I’ll attend. People queuing up to get in the car park blocking the road!!