Ovarian

I was diagnosed two years ago with ovarian,with malignant ascites and cancer in the peraneum. I did 6 carbo ,planned surgery midway was cancelled due to low platelets,at the end of the carbo on traces or scar tissue left,a few months later put on naraparib for a year then had to come off them due to low hemaglobin that two transfusions didn't fix..I.m exploring alternative options now. Sleep is an issue,no matter how tired I am as soon as I go to bed I.m wide awake stressing 

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  • Hi Kirsty-and-Mike, you have commented on a previous comment of mine on another thread. But my wifes experience is relevant to this thread my wife was also diagnosed with ovarian cancer 3.5 years ago. She had surgery and chemo and enjoyed 1 year cancer free. Unfortunately it returned in the Peraneum nearly 2 years ago, she had debulking surgery and further chemo and has been on Nirapaib for approx 18months although now incurable there are currently no signs of cancer, her medication and treatment has allowed her to lead a pretty normal life and still works full time, although no one knows what the future may bring. My wife although always shattered also has great deal of trouble sleeping and also suffers greatly from abdominal gastric problems due to her surgery and sometimes has had to use Morphine to manage he abdominal pain. But mainly her issues are managed and 3.5 years in she is doing well. 

  • So glad for you she is doing well thank you for your comments it helped Kirsty is being so brave at the minute but it is so hard not to be swallowed by the pit of despair