Lymphoedema

I got diagnosed with the BRAC2 Cancer in 2021 and since had a double  mastectomy and 9 lyympnodes from under my arm as it spreaded. I also partial hysterectomy. 

I don't like myself anymore as I've got lymphoedema and feel as though I'm carrying a ton of bricks. It's affected my mobility badly and just walking to the corner is a problem.

I had an appt with the Clinic and will have to ask if I can get expert help with this situation as I'm very emotional.

Parents
  • Hi dianne i gave had primsry lymphodema for  20yr affecting both my legs. Have worn support style stockings which i hate. But the difference they made is great. I struggle to get shoes to fit and refuse to wear cosy toes etc. I have found easyfit in pavers very good, but down to you. I spend mist of my time wearing trousers ot maxi dresses to cover them up. Only recently in the summer i have worn knee length shorts, i do get some looks from strangers but i have got to the point where i turn to them and  tell them my condition. 

    I have now been diagnosed with a rare cancer leimyosarcoma which has knocked me for six. But i face everyday as best as i can. My prognosis isnt great but we are still here and have a life to live. Please donit let tthis hold you back

Reply
  • Hi dianne i gave had primsry lymphodema for  20yr affecting both my legs. Have worn support style stockings which i hate. But the difference they made is great. I struggle to get shoes to fit and refuse to wear cosy toes etc. I have found easyfit in pavers very good, but down to you. I spend mist of my time wearing trousers ot maxi dresses to cover them up. Only recently in the summer i have worn knee length shorts, i do get some looks from strangers but i have got to the point where i turn to them and  tell them my condition. 

    I have now been diagnosed with a rare cancer leimyosarcoma which has knocked me for six. But i face everyday as best as i can. My prognosis isnt great but we are still here and have a life to live. Please donit let tthis hold you back

Children
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