Stage 3c Primary Peritoneal Cancer

I am now 76, was 75 when diagnosed. I have finished my 6 sessions of chemo p, last one on 17 November, and had surgery in the middle. Have had a CT and awaiting results, hopefully next week. Results have been delayed because of the doctors’ strike. Is there anybody else at a similar stage and willing to tell me how they are getting on?

  • Hello EAH

    I'm sorry to hear that you're still waiting for the results of your most recent CT and that they've been delayed due to industrial action. Hopefully, you will hear some news soon. 

    We know that for many people this period of waiting for test results can be difficult and it's natural that you may be feeling anxious. It can often help to talk things through with someone. If you'd like to chat with one of our nurses ahead of your results appointment you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. 

    Do let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Saw the oncology consultant yesterday for the results of my CT scan. Good news, everything's looking good and my cancer is in remission. I will see him again in 3 months for a check up but won’t need a scan. Unfortunately still no BRCA2 results so don’t know if I should be having further medication. Only one week and the three month window between the end of my chemo and if I need further treatment. Consultant said if my cancer comes back he can start the treatment then. Not really feeling reassured.

  • I decided to take matters into my own hands, as I only had a week before it would be too late for further treatment.  I made 2 phone calls to my surgeons secretary, 5 days apart. On day 8 I received a phone call, in the morning, from the surgeon’s secretary with my BRCA2 result, and apologies that I had to wait so long for the result. Negative. The MacM nurse phoned me in the afternoon with the result. If I managed this with 2 phone calls I don’t understand why the MacM nurse got nowhere chasing up since October!