Hi everyone Triple negative breast cancer very rare x

Hi just wanted to say hi not sure I can post on here as too much to say ?

saw the post re sleepless nights ! Chat thought it may help instead of googling stuff at night not slept for months on end 

I'm 56 Breast cancer first diagnosed January 2021 after waiting 3 months for correct diagnosis then I received  25 March a lumpectomy then 2 weeks later a scrape ( as much bigger than they thought )  next evening an emergency haematoma removal 

July 2021 Radiotherapy fir 2 weeks ( 9months off work total )

all this was during covid ! 

re-occurrence already back by January. 2023 The nightmare was back so soon unfortunately- 

Parents
  • Hi MarleyHarley,

    A very warm welcome to our forum.

    I am so sorry to hear of your diagnosis and subsequent re-occurrence. I had a recurrence a year after I had a lumpectomy and then had a double mastectomy. My cancer was Stage 1, pure mucinous cancer and was supposed to be one of the less aggressive cancers, so I was quite surprised to find it back, within a year. It is a great disappointment when it recurs so soon after treatment is over.

    What plans do you have for treatment this time? I am sorry to hear that you are not sleeping. I would agree with our moderator, Lucie, that Googling is never a good idea, especially at night. Have you tried any of the mindfulness courses available locally? Going to bed at the same time every night, getting into a relaxing mood before you go to bed and staying away from all electronic devices for at least half an hour, before you go to bed can all help too.

    Please keep in touch and remember that we are always here for you.

    Kind regards,

    Jolamine xx

Reply
  • Hi MarleyHarley,

    A very warm welcome to our forum.

    I am so sorry to hear of your diagnosis and subsequent re-occurrence. I had a recurrence a year after I had a lumpectomy and then had a double mastectomy. My cancer was Stage 1, pure mucinous cancer and was supposed to be one of the less aggressive cancers, so I was quite surprised to find it back, within a year. It is a great disappointment when it recurs so soon after treatment is over.

    What plans do you have for treatment this time? I am sorry to hear that you are not sleeping. I would agree with our moderator, Lucie, that Googling is never a good idea, especially at night. Have you tried any of the mindfulness courses available locally? Going to bed at the same time every night, getting into a relaxing mood before you go to bed and staying away from all electronic devices for at least half an hour, before you go to bed can all help too.

    Please keep in touch and remember that we are always here for you.

    Kind regards,

    Jolamine xx

Children
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