Angioimmunoblastic T cell Lymphoma: Wondering what’s next

Hi I had been unwell from July 2023 thinking I was run down so had a visit to the GP as I had developed a lump in the neck at 58 you expect things to happen to cut to the chase I ended up in hospital where I had a needle biopsy on the inflamed lymph node. A two week wait and the diagnosis was in a rare lymphoma called Angioimmunoblastic T cell and straight in for CHOP chemotherapy I have now finished the cycle and had my PET CT i have now had the results and although the lymph nodes are clear I am now showing high lighting on the pelvic area  so next stage is a bone marrow biopsy as they think it’s residue from the chemotherapy but they want to be sure. If everything goes well I s get a auto stem cell transplant.

  • Hello grick, 

    Thanks a lot for coming here and sharing your story. I am sorry to hear you are about to go through a bone marrow biopsy after something was flagged in the pelvic area. It's good that they are being thorough and want to be sure. I hope you find out soon what the next stages might be. Our website has detailed information on Angioimmunoblastic T Cell Lymphoma which I hope you will find useful and our nurses are only a free phone call away should you have any questions -  you can reach their helpline on 0808 800 4040 Monday to Friday from 9am to 5pm. 

    I thought I would also mention this very recent post by another member  who has been affected by this rare lymphoma - I hope you will be able to talk to others here who have had a similar diagnosis. Well done for finishing the CHOP chemotherapy cycle I hope that the treatment went well and it's good news that the lymph nodes are clear.

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Hi I went to see the consultant yesterday the bone marrow biopsy has been cancelled as after having bloods my count had increased what I didn’t realise that after chemotherapy there should be at least five weeks before a PET CT scan should be done as it will still pick up activity from residual chemotherapy.Feeling a bit surprised that this information wasn’t provided as it was being rushed along to meet stem cell transplant.