My son has very rare cancer PDLMM

My son 13, was eventually diagnosed through a brain biopsy after being misdiagnosed in August. We were told weeks maybe months. I’m hoping to find anyone to talk to as I believe he’s only number 26 in country to have been diagnosed. It’s a type of aggressive internal melanoma in his brain and spine 

Parents
  • Welcome to Cancer Chat Danka although I'm so sorry to hear about your son. I can't begin to imagine what you and your family must be going through right now.

    As your son has a very rare type of cancer, you may not find anyone else with this diagnosis on the forum, but we do have a community full of understanding and supportive members, some of whom will hopefully stop by when they can to offer their support and advice.

    If you'd like to talk any of this through with one of our cancer nurses, you can contact them on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and they will do all they can to help. 

    We're thinking of you Danka and sending all our strength to you and your family at this very difficult time.

    Kind regards,

    Steph, Cancer Chat Moderator

Reply
  • Welcome to Cancer Chat Danka although I'm so sorry to hear about your son. I can't begin to imagine what you and your family must be going through right now.

    As your son has a very rare type of cancer, you may not find anyone else with this diagnosis on the forum, but we do have a community full of understanding and supportive members, some of whom will hopefully stop by when they can to offer their support and advice.

    If you'd like to talk any of this through with one of our cancer nurses, you can contact them on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and they will do all they can to help. 

    We're thinking of you Danka and sending all our strength to you and your family at this very difficult time.

    Kind regards,

    Steph, Cancer Chat Moderator

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