Welcome to Cancer Chat Danka although I'm so sorry to hear about your son. I can't begin to imagine what you and your family must be going through right now.

As your son has a very rare type of cancer, you may not find anyone else with this diagnosis on the forum, but we do have a community full of understanding and supportive members, some of whom will hopefully stop by when they can to offer their support and advice.

If you'd like to talk any of this through with one of our cancer nurses, you can contact them on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and they will do all they can to help. 

We're thinking of you Danka and sending all our strength to you and your family at this very difficult time.

Kind regards,

Steph, Cancer Chat Moderator

Hello Danka,

Welcome to the Cancer Chat and I'm sorry to hear about your son's diagnosis. I can imagine this has been an incredibly difficult time for you, but there is support out there. If you need to some advice, there is some information here. There is also guidance on how to find support in your area here. Please don't be afraid to speak to your doctor with any questions you have and the forum is always here whenever you need it.

Best wishes,

Moderator Anastasia