My son has very rare cancer PDLMM

My son 13, was eventually diagnosed through a brain biopsy after being misdiagnosed in August. We were told weeks maybe months. I’m hoping to find anyone to talk to as I believe he’s only number 26 in country to have been diagnosed. It’s a type of aggressive internal melanoma in his brain and spine 

  • Hello Danka,

    Welcome to the Cancer Chat and I'm sorry to hear about your son's diagnosis. I can imagine this has been an incredibly difficult time for you, but there is support out there. If you need to some advice, there is some information here. There is also guidance on how to find support in your area here. Please don't be afraid to speak to your doctor with any questions you have and the forum is always here whenever you need it.

    Best wishes,

    Moderator Anastasia