Hi Astonand14,

A very warm welcome to our forum, although I am sorry to hear why you're here.

It is only natural that you are worried about all that lies ahead. The only experience I have had of this type of cancer is though that of a close friend. He had to travel to Liverpool from Scotland for the proton beam therapy. That was 6 years ago. He is now 86, still driving and doing well. He has regular check ups at the hospital.

As far as the target clips are concerned, he says that you don't need to worry about pain with them. He never felt anything. He was pre-warned that the proton beam therapy would mean that he'd lose the sight in the eye, but would kill the tumour. It worked in respect of the tumour and he still has a little peripheral vision.

I hope that this helps to reassure you, as you start this journey and wish you every success with the procedure.

Just a thought - you might get more replies from people who have had this treatment, if you asked one of the monitors to change your title to Eye cancer or proton beam therapy, as this will possibly catch the attention of people with similar experience.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Excellent idea Jolamine - I have now changed the title to make it more specific and catch the attention of people with a similar experience. 

Lucie

Excellent idea Jolamine - I have now changed the title to make it more specific and catch the attention of people with a similar experience. 

Lucie