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Ocular melanoma - Proton Beam Therapy

Astonand14
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Just about to start my journey with cancer treatments. I have a melanoma on the back of my left eye 16mm x 14mm 3.6mm high. I’m off to London on 28-12-23 for targeting clips. Really anxious about it.

Then off to Liverpool on 04-01-24 for mask fitting and first simulation then back there again for a week 14-01-24 for the proton beam therapy.

What I’m most worried about is the pain following the clip fitting because I was in a lot of pain when I was fitted with multi focal inter ocular lenses back in 2017

Parents

  • Hello Astonand14

    I'm sorry to hear about your recent diagnosis and that you're feeling so anxious ahead of your upcoming appointments. It's understandably a difficult time for you. 

    You might find it helpful to have a look through this thread that talks about some of the procedures and treatments you've mentioned. Hopefully it will give you some reassurance. 

    Do let your care team know about your concerns regarding pain management when you go for your appointment. I'm sure they will want to make sure you are as comfortable as possible and that things are well-managed. 

    Hopefully your appointment next week will go smoothly but if you'd like to chat things through with one of our nurses they are back in the office on Wednesday 27th December, 9am to 5pm on 0808 800 4040. 

    Keep in touch Astonand14 and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

Reply

  • Hello Astonand14

    I'm sorry to hear about your recent diagnosis and that you're feeling so anxious ahead of your upcoming appointments. It's understandably a difficult time for you. 

    You might find it helpful to have a look through this thread that talks about some of the procedures and treatments you've mentioned. Hopefully it will give you some reassurance. 

    Do let your care team know about your concerns regarding pain management when you go for your appointment. I'm sure they will want to make sure you are as comfortable as possible and that things are well-managed. 

    Hopefully your appointment next week will go smoothly but if you'd like to chat things through with one of our nurses they are back in the office on Wednesday 27th December, 9am to 5pm on 0808 800 4040. 

    Keep in touch Astonand14 and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

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