Hi, I'm just registering again. I had a cancer myself in 2015 and made a full recovery. Sadly, my husband is now very sick with cholangiocarcinoma. We're all reeling. He is taking a lot of opiates and sleeping a lot. His pain is a constant pre-occipation. Keeping ahead of the pain with pain relief is the objective. Avoiding getting over-tired (very difficult to achieve). Staging was advised only on Friday. His pain has advanced considerably sine he went to the GP just a month ago (30 days). First out-patient appointment with oncologist on Tuesday coming, though a Cons Onc was seen as an in-patient last week. Does anyone have relevant tips? I'm not sure about having the immunotherapy in addition to standard treatment (chemo) as my husband has psoriatic arthritis, an auto-immune disease. (I've experienced Guillian Bare Syndrome myself (4 years ago), and I'm nervous about possible, very serious side effects.)
