Raised calprotectin worried.

Hi all,

Just wanted some insight i have a raised fc level of 88 with ibs symptoms. Fit was negative despite having spotting of blood i have seen. Blood tests are fine. 

History-

Colonscopy in 2014 showed possible crohns as ulcers found in ileum put on pentasa. I started to feel better however all mri and biopsys still did not give a crohns diognosis. 

Repeat colonscopy in 2018 clear colonscopy ulcers had gone.and calprotectin was level 90. So was given a diognosis of ibs and discharged.

Lived life like normal always having ibs type symptoms now and then stools have never always been 100% some days are better then others. 

Lately bowels seem more erratic due to anxiety and stress. And all tests have come back clear except slight raised calprotectin of 88. I am very scared and confused as to what is going on. Gp states levels are more or less the same as 5 years ago and colonscopy was clear. So im just confused as to what to do. I know my levels are not high compared to many on here. But just need to know what should be done. I feel as though i have just been misdiagnoised and now its too late. 

I am so scared and if it is just ibs or something else  

Any advice would be greatly appreciated.

Parents
  • Hi Anon,

    Did you hear from your gastro?

  • Hi, 

    I have been refered for a colonscopy and small bowel mri still waiting for appointments i dont know how long it will all take. I had a urgent ct scan of abdoman and pelvis few days ago under the 2 week pathway. So hopefully will get some indication of somesort soon. The stress and anxiety is just too much to bear.my daily life is just affected beyond belief. I cant eat or sleep. How are things with you? Any updates? 

  • Hope you get appointments soon and results for CT quickly. I fully understand the anxiety and stress. My GP has prescribed propranolol to help with the stress it has stopped my stress reaching high levels.

  • Im glad to hear that you are feeling better after the meds. I am trying to find other ways to manage stress. How are your symptoms now? What are you waiting for at the moment a repeat calprotectin? 

  • My symptoms have eased of a lot actually. Just posted my repeated test today

  • Thats so good to hear, im so glad. Hopefully this should all come back clear and you can get on and start enjoying life. Honestly health is wealth, we take it all for granted. 

  • Offline in reply to Anonworried Unpublished Reply

    Hiya i had a urgent ct scan of abdoman and it came back ok. But i am still not convinced i have been refered for a colonscopy and small bowel mri which i am waiting for a date dont know how long it will take. Honestly just to get diagnosis is the actual nightmare. Its so wrong and mentally draining to keep people waiting. My iron levels have dropped further which is more concerning. I just want answers. I know a clear ct scan should be reassuring but i feel as though its missed sometjing? 

  • Offline in reply to Anonworried Unpublished Reply

    Hiya i had a urgent ct scan of abdoman and it came back ok. But i am still not convinced i have been refered for a colonscopy and small bowel mri which i am waiting for a date dont know how long it will take. Honestly just to get diagnosis is the actual nightmare. Its so wrong and mentally draining to keep people waiting. My iron levels have dropped further which is more concerning. I just want answers. I know a clear ct scan should be reassuring but i feel as though its missed sometjing? 

  • Offline in reply to Anonworried Unpublished Reply

    Hiya i had a urgent ct scan of abdoman and it came back ok. But i am still not convinced i have been refered for a colonscopy and small bowel mri which i am waiting for a date dont know how long it will take. Honestly just to get diagnosis is the actual nightmare. Its so wrong and mentally draining to keep people waiting. My iron levels have dropped further which is more concerning. I just want answers. I know a clear ct scan should be reassuring but i feel as though its missed sometjing? 

  • Offline in reply to Anonworried Unpublished Reply

    Hiya i had a urgent ct scan of abdoman and it came back ok. But i am still not convinced i have been refered for a colonscopy and small bowel mri which i am waiting for a date dont know how long it will take. Honestly just to get diagnosis is the actual nightmare. Its so wrong and mentally draining to keep people waiting. My iron levels have dropped further which is more concerning. I just want answers. I know a clear ct scan should be reassuring but i feel as though its missed sometjing? 

  • Offline in reply to Anonworried Unpublished Reply

    Hiya i had a urgent ct scan of abdoman and it came back ok. But i am still not convinced i have been refered for a colonscopy and small bowel mri which i am waiting for a date dont know how long it will take. Honestly just to get diagnosis is the actual nightmare. Its so wrong and mentally draining to keep people waiting. My iron levels have dropped further which is more concerning. I just want answers. I know a clear ct scan should be reassuring but i feel as though its missed sometjing? 

Reply
  • Offline in reply to Anonworried Unpublished Reply

    Hiya i had a urgent ct scan of abdoman and it came back ok. But i am still not convinced i have been refered for a colonscopy and small bowel mri which i am waiting for a date dont know how long it will take. Honestly just to get diagnosis is the actual nightmare. Its so wrong and mentally draining to keep people waiting. My iron levels have dropped further which is more concerning. I just want answers. I know a clear ct scan should be reassuring but i feel as though its missed sometjing? 

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