Raised calprotectin worried.

Hi all,

Just wanted some insight i have a raised fc level of 88 with ibs symptoms. Fit was negative despite having spotting of blood i have seen. Blood tests are fine. 

History-

Colonscopy in 2014 showed possible crohns as ulcers found in ileum put on pentasa. I started to feel better however all mri and biopsys still did not give a crohns diognosis. 

Repeat colonscopy in 2018 clear colonscopy ulcers had gone.and calprotectin was level 90. So was given a diognosis of ibs and discharged.

Lived life like normal always having ibs type symptoms now and then stools have never always been 100% some days are better then others. 

Lately bowels seem more erratic due to anxiety and stress. And all tests have come back clear except slight raised calprotectin of 88. I am very scared and confused as to what is going on. Gp states levels are more or less the same as 5 years ago and colonscopy was clear. So im just confused as to what to do. I know my levels are not high compared to many on here. But just need to know what should be done. I feel as though i have just been misdiagnoised and now its too late. 

I am so scared and if it is just ibs or something else  

Any advice would be greatly appreciated.

Parents Reply Children
  • Offline in reply to Anonworried Unpublished Reply

    Hiya i had a urgent ct scan of abdoman and it came back ok. But i am still not convinced i have been refered for a colonscopy and small bowel mri which i am waiting for a date dont know how long it will take. Honestly just to get diagnosis is the actual nightmare. Its so wrong and mentally draining to keep people waiting. My iron levels have dropped further which is more concerning. I just want answers. I know a clear ct scan should be reassuring but i feel as though its missed sometjing? 

  • Offline in reply to Anonworried Unpublished Reply

    Hiya i had a urgent ct scan of abdoman and it came back ok. But i am still not convinced i have been refered for a colonscopy and small bowel mri which i am waiting for a date dont know how long it will take. Honestly just to get diagnosis is the actual nightmare. Its so wrong and mentally draining to keep people waiting. My iron levels have dropped further which is more concerning. I just want answers. I know a clear ct scan should be reassuring but i feel as though its missed sometjing? 

  • Offline in reply to Anonworried Unpublished Reply

    Hiya i had a urgent ct scan of abdoman and it came back ok. But i am still not convinced i have been refered for a colonscopy and small bowel mri which i am waiting for a date dont know how long it will take. Honestly just to get diagnosis is the actual nightmare. Its so wrong and mentally draining to keep people waiting. My iron levels have dropped further which is more concerning. I just want answers. I know a clear ct scan should be reassuring but i feel as though its missed sometjing? 

  • Offline in reply to Anonworried Unpublished Reply

    Hiya i had a urgent ct scan of abdoman and it came back ok. But i am still not convinced i have been refered for a colonscopy and small bowel mri which i am waiting for a date dont know how long it will take. Honestly just to get diagnosis is the actual nightmare. Its so wrong and mentally draining to keep people waiting. My iron levels have dropped further which is more concerning. I just want answers. I know a clear ct scan should be reassuring but i feel as though its missed sometjing? 

  • Offline in reply to Anonworried Unpublished Reply

    Hiya i had a urgent ct scan of abdoman and it came back ok. But i am still not convinced i have been refered for a colonscopy and small bowel mri which i am waiting for a date dont know how long it will take. Honestly just to get diagnosis is the actual nightmare. Its so wrong and mentally draining to keep people waiting. My iron levels have dropped further which is more concerning. I just want answers. I know a clear ct scan should be reassuring but i feel as though its missed sometjing? 

  • Hiya i had a urgent ct scan of abdoman and it came back ok. But i am still not convinced i have been refered for a colonscopy and small bowel mri which i am waiting for a date dont know how long it will take. Honestly just to get diagnosis is the actual nightmare. Its so wrong and mentally draining to keep people waiting. My iron levels have dropped further which is more concerning. I just want answers. I know a clear ct scan should be reassuring but i feel as though its missed sometjing? 

  • How was your recent stool sample 

  • Great to hear the CT was clear. My recent stool test came back as calprotectin as 43 so now under the threshold

  • Hey thats fantastic news so pleased for you, now that should give you some ease and you can start to feel back to normal now. They never bothered to do another for me just straight checks given my h tory i should have never been discharged im told. Feel so let down by my previous consultant. Just praying its not gone so bad now, hopefully not as my levels are more or less same as 5 years ago   keep me in your prayers. Its been great sharing experience with someone who understands. Wishing you all the best always x