Hi Dio sorry about mums problems I’m in a similar situation but they can’t get my  biopsy as they couldn’t get into my kidney as mines uterus as well. I was just going to say record your call fr9m r phone so you can play back and listen again *** sometimes your head gets fuzzled.Good luck let’s hope it’s good news

Hi Willow,

Sorry to hear your diagnosis. 

I did record it to take it all in otherwise it's easy to miss anything. It's an overwhelming time. It's a bit strange doing a video chat. 

Op was done in October. Didn't do a biopsy as it looked suspicious. Good call in a way as it expidited the operation day. 

I hope your treatment goes well soon. 

Thankyou well I’m glad it went well with mum how is she doing ? Xx 

These things are never as you expect.the operation was unpleasant but necessary. Healing is going well. Are you due for the op soon? 

These things are never as you expect.the operation was unpleasant but necessary. Healing is going well. Are you due for the op soon? 

I’m sorry to hear that but at least it’s done now. And hopefully on the road to recovery,I have a rare prognosis Neoplasma of the renal pelvis and urethrer ,They went in internally with camera but couldn’t past urethrer to get into my kidney for biopsy as they were going to biopsy and then blast the few kidney stones and the tumour away.So I’ve had to have a stent and go back in for procedure 9 feb in between they’ve just done Ct scan of lungs as aggressive and to see if it has gone to them,I’m feeling sicker and more poorly every day my breathing is getting tight I know I should admit myself to hospital but I’m on my own with my little dog I have elderly parents and dads just broken his shoulder so I haven’t got much support as everyone seems to be in a muddle with their lives at the moment,Sorry I’m waffling on……..Thankyou for listening x 

I hope the lungs come back clear and everything is benign. They should have a good idea if it's of concern. 

Hospitals are horrible places to stay but a visit to a and e may be worth trying. It's good that you are around for your parents but remember your health and wellness is important for helping them. 

Your not waffling. It's such a hard time waiting, It's hell. 

Morning,hope your doing ok ,so sorry for late reply I trod on my iPad,I don’t know what I’m doing half the time in the night sleeping impossible with night sweats they are awful! I haven’t had any conversations with consultants etc about symptoms I feel I’ve been left to get on with it until he has full tests but 22 November my tests started ,did you have to wait for a long time,? 

Morning,

I'm guessing your in England? I'm in Scotland so I don't know if things differ much. It felt slow but from first issue found to operate was around 10 weeks. 2 to 3 weeks for the ultrasound after already performing cts. 

It was an overwhelming experience. I thought I'd known stress but that was hard.

Don't hesitate to chase up everything. Do you mean left to get on with it until your results? I get that.

Try and focus on the little positive things, I was stressing looking at websites about all the worst things and could feel myself getting exhausted and Ill. Were all different but I just focused on small positives, even if small. it helped me some.

Thankyou for your kindness yes I’m in England .May your mum continue with good health she’s lucky having you at her side sounds like mine and my mums relationship but poor mum Lot older now I don’t nt her having to lose me .take care and thankyou xxx

Thank you too for such kind words. I totally get that you want to be around for your parents. Sadly a value this country doesn't value much anymore.

I hope to hear some positive news from you in the future, good luck. X