Anxious Time

Hello,

My journey has only just begun. Following a positive Bowel Cancer Screening Test in July, I had a colonoscopy on Friday (11th) and was told I have a malignant ulcerated rectal tumour. I have multiple diverticula, had 2 polyps removed (probably benign), 8 samples taken for biopsy and was taken for an immediate CT Scan. The Specialist Nurse (who was brilliant) said I would be sent an appointment for an MRI. She also said my case would go to the MDT the week after next. During my colonoscopy I was asked if I had been bleeding for a long time. The question and the speed that everything is happening has worried me in case it means things are really advanced. I am pleased things are moving quickly, but concerned at the same time.  I am due a telephone call from the Specialist Nurse tomorrow.  Everything seems so unreal - one minute I feel quite positive and the next I am in the depths of despair.

Parents
  • I do understand the feeling of unreality, that this can't be happening to me, why and how, and the depths of despair. Keep talking on here because it does help. Let us know, please, how the telephone call goes tomorrow.

  • I had the call from the Specialist Nurse today. She assured my that my feelings are normal. She said the samples were taken for biopsy to gain histology, not because anything else causing concern had been seen. My appointment for MRI is for Thursday.  I asked if the speed everything is happening means the cancer has spread, but she said no, it's the normal process.  Colonoscopy on the 11th, CT Scan on the 11th, MRI on the 17th, MDT meeting on the 22nd.  Thanks for reading x

Reply
  • I had the call from the Specialist Nurse today. She assured my that my feelings are normal. She said the samples were taken for biopsy to gain histology, not because anything else causing concern had been seen. My appointment for MRI is for Thursday.  I asked if the speed everything is happening means the cancer has spread, but she said no, it's the normal process.  Colonoscopy on the 11th, CT Scan on the 11th, MRI on the 17th, MDT meeting on the 22nd.  Thanks for reading x

Children