Life, work, do we ever feel normal again?

I was diagnosed with esophagus cancer May 2022.

I lost my mum October 21, her older sister passed away the day of her funeral. November 21 my dad was diagnosed with asbestos related lung cancer, he passed away March 22. I was getting a lot of heartburn and acid reflux mentioned it to doctor in passing. I put it down to stress, she sent me for tests, mid April I had the camera down throat. They told me then they suspected cancer. Officially diagnosed in May.

July I started a course of chemo before my operation in September. I should have another course of chemo after the operation, this didn't happen due to complications.

What happened, a ten day stay in hospital turned into seven weeks. Two days after the operation I had a cardiac arrest and was put into a coma, I subsequently had a stroke whilst in the coma. I don't remember anything between sitting in waiting room until someone stood over me asking who the prime minister was. I lost eight days.

Can't remember what it's called but something was taking its time to heal, so I was dripped fed for six weeks, nothing by month and stuck in a hospital bed, not able to turn round or sit up without help.

I was eventually allowed home and had to learn how to eat and use my right arm again both are still work in progress. I've gone from sixty seven kilos to thirty nine.

The surgeon is pretty sure he got all the cancer.

My focus was to get back to work and normality. I did get back to work earlier this year. Now I feel I've made a big mistake. I'm struggling with work , making silly mistakes. Some days I'm not able to get in. I'm physically exhausted, all I do is go work, on my days off I don't get even get dressed, I don't go out or contact friends. I'm struggling more now than when I was having treatment. I'm thinking it's time I stopped working but not sure I can afford it or that I'm just feeling sorry for myself and giving in.

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  • Crikey - you’ve been through the mill.

    From personal experience, I recommend you go down the PIP route (it isn’t means tested and unlocks other benefits such as a blue badge). If they’re active locally, I’d also recommend you ask MacMillan to apply on your behalf as they have a fast-track agreement with DWP. 

    Like you, I went back to work too early and I came to regret it. I then went off sick for 6 months and ended up retiring on ill-health grounds. That have my body and mind time to recover - it took far longer than I’d imagined and I’d only had straightforward oesophageal cancer with none of your complications. Eventually I recovered, came off PIP and started working part time and volunteering with CRUK and a local charity. 

    Things may feel bleak at the moment but please step back, celebrate being still alive and concentrate on recovering, rather than on working. The PIP isn’t a large income but it might take away a little of the financial pressure while you fully recover. 

    Best wishes

    Dave

  • Gave not have - I do miss the edit function lol

  • Thank you everyone for your support. I've decided to reduce my hours to 16 and review how it's going after a few weeks. If I'm still not feeling able to cope, I know its time for me to finish.

    OH agreed and so did the specialist. I've also seen a counsellor to help with mental health.

    Sorry I haven't replied sooner, I've been mulling over my options and I really do appreciate your support.

  • Mags

    hkpe you are feeling better hope reducing hours works for you I’m sure it will do you good for a while until you feel better xx good luck xx

  • That sounds sensible, you’ve not burnt any bridges and you’ve given yourself time to think without making too big a decision. 
    Best wishes

    Dave

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