Large Diffuse B Cell Non-Hodgkins Lymphoma

Anyone in similar boat to me? I'm told I'm terminal but have beaten the odds before At the moment I'm feeling quite fine and enjoying life each day as it comes  I'd love to hear from any women within reach (I live in Canterbury Kent) for friendship

Time is the most valuable gift we can give 

Pete 

Parents
  • Hi Pete.

    while I'm not unfortunately a woman or anywhere near Canterbury, I'm currently in remission from a rare aggressive type of NHL called Burkitt Lymphoma, initially suspected to be DBCL - but different in cell nature and a little more rotten!

    if you do feel like you would like to chat, please feel free to message me through this forum

    Sean 

Reply
  • Hi Pete.

    while I'm not unfortunately a woman or anywhere near Canterbury, I'm currently in remission from a rare aggressive type of NHL called Burkitt Lymphoma, initially suspected to be DBCL - but different in cell nature and a little more rotten!

    if you do feel like you would like to chat, please feel free to message me through this forum

    Sean 

Children
  • Hi Sean

    I'm OK to chat

    Glad to hear you are in remission

    I'm nearing the end of chemo treatments, I'm having a PET scan on Tuesday then on 29th March my cancer specialist will send my results to a London hospital for a second opinion and to see if any trials available I can go on My last PET scan showed 20 out of 21 tumours gone but not the original one which is why after two years of chemo, I'm now on pallative care with the aim of buying me more time (50 % chance of living 6 to 12 months)

    I'm interested to hear your story if you OK sharing it

    Pete