Hi Owen,

A very warm welcome to our forum. 

I am so sorry to hear that you are in a similar situation to Nevada. Have you spoken to your mum's care team, about arranging for her to have carers coming to her home? They can arrange a number of different things for her, as her needs change. You can have a hospital bed if needed, carers coming in to see to her personal needs (up to 4 times a day), build-up puddings an drinks if needed, visits from your practice and district nurse to see to her medication. You can even have someone to sit with her at night to give your dad a chance to sleep. 

I have been through this situation with my in-laws and it really is too much for one person to do on his own. I am surprised that the hospital didn't mention any of these services before they sent your mum home. She may also be entitled to additional benefits when her condition is terminal. Macmillan can help with this.

Please keep in touch and let us know how you all getting on. We are always here for you.

Kind regards,

Jolamine xx

I myself have sorted some night care out , the hospital went very good. She needs equipment that we are struggling to get as well, it is all like a bad dream and yes it is too much for one person to do 

My mum is also just on steroids, she can't get out for a walk and was also fit and healthy, took early retirement a month prior to diagnosis, she's 64 

Hi Owen24,

Really sorry to read about your mother's condition.

I suppose we've got all this to come in the weeks to follow.

MacMillan have been brilliant in obtaining us a Blue Badge and arranging the PIP benefit under the 1500 rule of urgency.

Please keep in touch and my thoughts are with you all.

Hi Owen,

The social work department should be able to sort this out. The other thing you could do is to contact the occupational health or physio department, as they could also sort out equipment.

Kind regards,

Jolamine xx

Hi, just checking how you both are ? X

Hi Owen,

We're just enjoyed a short break in Chester. Taking advantage of a wedding present hotel voucher.

The cancer hospital left a message for us saying that they would like to take a CT scan of my wife before our meeting on Tuesday to discuss the results of the brain biopsy. We taking it as a positive proactive action on their part.

I hope your mother is as comfortable as can be.

That sounds positive then, hope you have a fantastic time away 

The holiday went well.

Our meeting yesterday with the specialist confirmed my wife has got stage 4 brain cancer. It's a primary cancer. The kidney cancer is also a primary cancer.

Radiotherapy treatment for the brain starts on the 28th March.

Into battle we go. ! 

Well good luck, my mum has took a turn for the worst this week, she's now end of life and on a syringe driver