Hi, I am in exactly the same position , we took my mum into hospital 4 weeks ago, also thought she'd had a stroke as she had weakness to her left side and had been slightly forgetful, leaving the taps in and small things like that. An MRI showed a glioblastoma, so aggressive that she wasn't able to have any treatment, we decided to take her home as this was her wishes. She has deteriorated in the few weeks she has been home and now struggles to walk as she cannot lift her left leg, she doesn't speak much either, shrugs or nods her head, I know she knows what's happening and it breaks my heart to see her. My dad is looking after her but we will need help as he is struggling physically and mentally, I am fearful for what's to come. I hope you get the results and there is something they can do for your wife.

Hi Owen,

A very warm welcome to our forum. 

I am so sorry to hear that you are in a similar situation to Nevada. Have you spoken to your mum's care team, about arranging for her to have carers coming to her home? They can arrange a number of different things for her, as her needs change. You can have a hospital bed if needed, carers coming in to see to her personal needs (up to 4 times a day), build-up puddings an drinks if needed, visits from your practice and district nurse to see to her medication. You can even have someone to sit with her at night to give your dad a chance to sleep. 

I have been through this situation with my in-laws and it really is too much for one person to do on his own. I am surprised that the hospital didn't mention any of these services before they sent your mum home. She may also be entitled to additional benefits when her condition is terminal. Macmillan can help with this.

Please keep in touch and let us know how you all getting on. We are always here for you.

Kind regards,

Jolamine xx

Hi Owen,

A very warm welcome to our forum. 

I am so sorry to hear that you are in a similar situation to Nevada. Have you spoken to your mum's care team, about arranging for her to have carers coming to her home? They can arrange a number of different things for her, as her needs change. You can have a hospital bed if needed, carers coming in to see to her personal needs (up to 4 times a day), build-up puddings an drinks if needed, visits from your practice and district nurse to see to her medication. You can even have someone to sit with her at night to give your dad a chance to sleep. 

I have been through this situation with my in-laws and it really is too much for one person to do on his own. I am surprised that the hospital didn't mention any of these services before they sent your mum home. She may also be entitled to additional benefits when her condition is terminal. Macmillan can help with this.

Please keep in touch and let us know how you all getting on. We are always here for you.

Kind regards,

Jolamine xx

I myself have sorted some night care out , the hospital went very good. She needs equipment that we are struggling to get as well, it is all like a bad dream and yes it is too much for one person to do 

Hi Owen,

The social work department should be able to sort this out. The other thing you could do is to contact the occupational health or physio department, as they could also sort out equipment.

Kind regards,

Jolamine xx