Anyone starting chemo next month (Feb 2023)?

Hi there, 

Attempting to start a thread for people starting chemo like me next month. 

I'm starting EC Chemo after having had my breast cancer removed - 4 rounds every 3 weeks, starting on Friday 3rd Feb. 

Anybody in a similar situation and wants to join the chat so that we can support each other, would be amazing. 

Sending love and light to everyone. 

Michelle x

Parents
  • Hi I had my chemotherapy last year started in February every three weeks then every week for 12 weeks. When I started going every week I had a pick line put in place.  Take care we are all on different journeys and the best of luck it's hard at times but stay positive and strong thinking of you x

  • Thank you for sharing, Lobelia. It really helps to hear that others got through it. 

    When you didn't have the picc line, was it okay? I think I'm going to turn down the picc line as I have 4 every 3 weeks and that's it. So I don't know why I need it in during that time. Helps to know you didn't have yours until you went weekly. Was it okay via cannula every week? And what chemo did you have?

    Finally, did you lose hair and how is it now? 

    Take care,

    Michelle

Reply
  • Thank you for sharing, Lobelia. It really helps to hear that others got through it. 

    When you didn't have the picc line, was it okay? I think I'm going to turn down the picc line as I have 4 every 3 weeks and that's it. So I don't know why I need it in during that time. Helps to know you didn't have yours until you went weekly. Was it okay via cannula every week? And what chemo did you have?

    Finally, did you lose hair and how is it now? 

    Take care,

    Michelle

Children
  • You have to go in every week to have pick line flushed so I did not have it put in till I was going every week I had ECx3 cycles followed by 3 weekly Carboplation +weekly Paclitaxel the treatment was for 12 weeks which has left me with Peripheral neuropathy in my feet and it did effect my face for a while The cannula was ok but I did not like it pleased when I got pick line.      yes I lost my hair very quickly. Now I have chemo curls.  Hope you get on ok thinking of you x

  • Thank you for sharing again. It's so very helpful! Makes me feel more prepared and less fearful. 

    I'll let you know how I get on. Take care  

    Michelle x

  • Yes do keep in touch stay positive x

  • Thank you D!

    All went smoothly and was totally fine. As always, the fear and anticipation is actually worse than the event! 

    Feeling a bit woozy but apart from that I'm okay so far. Lots of anti-sickness meds to take, which I'm grateful for! I was there from 930-130, so having a book and downloaded shows really helped. And sipping water was the best thing I could've done - so please do that. 

    I'll let you know how the next few days go. I know how scared I was feeling all week and it was realy for nothing, so I hope you're able fo take some comfort in that X

  • Oh you have definitely put my mind at rest, I've been nervous all week!

    im glad your feeling ok, hopefully it continues let me know.

    I've got my books ready and will take water and snacks as have a feeling I'll be there a bit longer with using the cold cap...well if I can tolerate it! We'll see.

    well your 1st one done and your on your way to getting them finished now. I'll let you know how I get on xxxx

  • I'm actually really annoyed at how scared I was all week - I cried every day this week just from fear, and it was genuinely nowhere near as bad as I had in my head. Our minds are our own worst enemies.

    Snacks is a great idea too, I did the same. And the other thing that really helped me was asking my friend to collect me and bring me home. It actually felt easier than having my husband/sister/mum/dad because she just made me laugh, got my mind off things, made me lunch! Whereas my husband and family is just as worried as me which is totally understandable but it isn't helpful!

    You'll be in longer with the cold cap but everyone I saw that had the caps were happy, so that also might be better than we are imagining in our heads!

    I'll let you know how I get on over the weekend. Do as much stuff that gives you joy this week xxx

     

  • Hi Michelle

    How u getting on? I hope your doing good.

    I've had 2 lots of my weekly Paclitaxel now and am ok, bit of a upset stomach and face is a little red and blotchy but all manageable. 2 down and 10 to go...feels like forever!

    x

  • Hi everyone,

    A late intro from me! I have breast cancer, I started my chemo on Friday. Two months of EC every fortnight, then three months of Paclitaxel every week.

    Then potential double mastectomy :( was originally scheduled for lumpectomy but they found it also in my left breast so my surgeon has introduced the choice.

    The first day of chemo I felt awful in the evening, my partner was cooking lamb and the smell of it turned my stomach, I spent a while vomiting.

    But since then no throwing up and only a small amount of nausea. I was worried it would get worse when I stopped taking the steroids / anti sickness meds but it's been ok thus far, touch wood. I am very tired though.

    I know chemo is accumulative so I am under no illusions that it is going to be a breeze for the rest of the 19 weeks....!

    I feel like my whole year is going to be spaffed away now on treatment, but there's not much I can do. I just have to put myself in the hands of the NHS.

    I fainted at my picc line cleaning the other day, never fainted before in my life, so that was something.

    Gonna have to revise my 40th birthday plans for the summer but hey ho.

    Best of luck to everyone x 

  • Hi Clars

    It sounds like you've had a tough week but remember you are on your way to getting better now keep that in mind. Your doing it ️

    I've had 2 Paclitaxel so far, couldn't have this weeks as my bloods showed high liver functions due to the treatment, so I'm hoping it can continue next week as I just want it done. I think you might find weekly Paclitaxel easier than EC. I haven't had EC but I've heard it can be tough going.

    The taxol has been ok I've had a rash on my face which they've gave me cream for and stomach cramps but other than that been ok! Was disappointed this week as felt well but my liver just said No thanks so not much I could do!

    let me know how you get on and take care xxx