Hi Michelle,

im starting my rounds 9th Feb! Had a lumpectomy in December which all went well...I'm having weekly Paclitaxel for 12 weeks and herceptin every 3 weeks for a year as my BC is HER+.

I feel a little nervous but ready to get started and kick it's *** at the same time! How are you feeling?

are you going to try the cos cap? I think  going to give it a go.

I wish you loads of love and luck on your journey...kick its butt xxx

love D xx

Hi D,

Thank you for replying. Feeling the same as you - ready but nervous. It's just the unknown, isn't it?! You just don't  know how it's going to affect you. I think once the first is done, I'll feel much better. I'll certainly let you know how it goes!

I applaud you for trying the cold cap. I've decided not to, as I just can't cope with another uncertainty of will it/won't it work. Although they're really trying to convince me to at least try it. Think I'll see how I feel on the day. I really hope it goes okay for you.

Have you thought about buying a silk pillow or silk sleep hats? 

Have they offered you a PICC line? They want me to have one, but I think I'll go for a cannula is it's 1 every 3 weeks.

Michelle x

Hi D,

I had my oncology appointment today where they also showed me the chemo suite. Most women in the ward had cold caps on and everyone in there just seemed very serene... The suite was quite nice, the chairs were comfy and you can put your feet up (some had taken blankets), and many were reading books or listening to music. It was good to see it before having my infusion on Friday, so maybe ask whether you can do the same. 
 

I'll let you know how Friday goes. X

Oh I'm so pleased you got to see it as I think it helps put your mind at ease. I'm there 7th for a pre assessment so will hopefully get to see the suite and cold cap things then ready to start 9th.

I've ordered some books ready to take with me and maybe some magazines...gonna get prepared ha.

Did u decide about the cold cap? 

I'll be thinking of you Friday, but you have totally got this...your on the road to getting better now...Just keep that in mind! 
let me know how Friday goes...let's get this thing done  xxx

Yes same - have got loads of books and podcasts too! And some nice snacks. 

I definitely won't cold cap as I've got my head around shaving my hair off, but I have to say, the women with the cold caps looked comfortable, so it did make me think twice! 

Absolutely, D, We've got this! X

Hi I had my chemotherapy last year started in February every three weeks then every week for 12 weeks. When I started going every week I had a pick line put in place.  Take care we are all on different journeys and the best of luck it's hard at times but stay positive and strong thinking of you x

Thank you for sharing, Lobelia. It really helps to hear that others got through it. 

When you didn't have the picc line, was it okay? I think I'm going to turn down the picc line as I have 4 every 3 weeks and that's it. So I don't know why I need it in during that time. Helps to know you didn't have yours until you went weekly. Was it okay via cannula every week? And what chemo did you have?

Finally, did you lose hair and how is it now? 

Take care,

Michelle

You have to go in every week to have pick line flushed so I did not have it put in till I was going every week I had ECx3 cycles followed by 3 weekly Carboplation +weekly Paclitaxel the treatment was for 12 weeks which has left me with Peripheral neuropathy in my feet and it did effect my face for a while The cannula was ok but I did not like it pleased when I got pick line.      yes I lost my hair very quickly. Now I have chemo curls.  Hope you get on ok thinking of you x

Thank you for sharing again. It's so very helpful! Makes me feel more prepared and less fearful. 

I'll let you know how I get on. Take care  

Michelle x