Feeling scared and overwhelmed

Hi 

Been reading these chats for a few days and feel it's been a help.

I went to my GP 3 weeks ago and was given antibiotics for mastitis, it didnt clear up after the week so went back and this time he referred me to the breast clinic on a 2 week fast track, so went today.

I was really nervous but to be honest I expected them to say it's an infection or a cyst. After 2 mammograms and ultrasound the doctor told me there was something suspicious and took biopsy's from breast and lymph nodes. I was then told I'd wait around 10 days for results but they were pretty sure it was cancer! The doctor talked about surgery and other options but will know more once results are back.

im just so scared that there will be nothing they can do...I'm 47 and just never expected to go through this...who does I suppose. 
Just wanted to share my story and hope there is a lot of survivors out there with positive stories xx

 

  • Hi Deedot,

    I know how you feel, this time last year at 38 I was told I had Breast Cancer, my Gp suspended a Cyst as did the consultant, it wasn't until I had my Ultrasound the Radiologist told me it was BC. I literally fell to the Floor in complete shock. 
     

    This is the worst you will feel, the not knowing is so hard, your mind plays tricks on you, I spent many a night sat up all night thinking some awful things. 
    once I had all the info on the table I could process it and felt much better as your team will have a plan for you. Did they assign you a Nurse Yet? They are really great too talk things through with you. 

    The hard things are waiting for the results they always seem too take so long.

    I had a Lumpectomy, Chemo and Radiotherapy's I'm now on hormone therapy for at least five years. 
    treatment is so advanced, you will be okay, it will soon be over and you will be okay. 
     

    Make sure you get lots of support from family and friends xxx

     

  • Thank you so much and I'm really glad you are getting better.

    Its just so scary being told and not knowing the plan. The consultant said she would call me this week with an appointment to get biopsy results and treatment plans but of course my mind is racing thinking what if they can't do anything or it's spread...I just wasn't prepared but who is? She did mention a lumpectomy but said they'd know more in a week or so. I have a lovely husband and family who are all supportive so I know I'm lucky xx thank you again for your really positive response xx

  • I'm so pleased you have a lovely family you will need their support, it's natural too worry, if it is in your Lymph nodes think of it as though they have done their job, there is lots of things that can be done if it has so don't think too dark.

    Also don't freak out if you have a MRI or Ct or Both, this is routine in most cases, they just like too tick every box.

    Think of it this way, however the worry you have if you didn't do anything things would be a lot worse, you will be okay it's a Bump in the road xxx

  • Thank you so much I'm trying to stay positive xxx

  •  

    Hi Deedot,

    A very warm welcome to our forum. Snow-drop has already told you that this is the worst you will feel and she is right. Waiting for a diagnosis is terrifying. I lost my mum to secondary breast cancer, but that was well before I was diagnosed. She had a tough journey and I was really dreading it. I'm pleased to say that diagnosis, treatment and aftercare have all improved so much in the intervening years, that there was just no comparison between our experiences.

    I have had 2 bouts of breast cancer in the past 13 years. I had a lumpectomy first, followed by a double mastectomy the following year. Getting through those first few years was tough, but I'm still here and I lead a busy and fulfilling life. I doubt that they'd be planning a lumpectomy, if they felt that it had spread, so here's hoping that you've caught it early.

    You have certainly done the right thing in getting it investigated. In some ways having been told that they suspect cancer, gives you a little time to come to terms with this diagnosis. I was told the same on three occasions, but fortunately, a biopsy found one lump was non-malignant. None of us want this diagnosis, but it is what it is and you'll get through it.

    Please keep in touch and let us know how you get on. We are all here for you.

    Kind regards,

    Jolamine xx

     

  • Thank you Jolamine, I'm pleased you are doing well now...I'm trying to keep positive so hearing that has certainly helped me. I think once I know the full plan I can tackle it, I just feel a little lost at the moment and a good nights sleep would be nice .

    I will let you know how I get on for sure, thanks again xx

  • Hi ladies 

    just wanted to give you an update..so it was BC stage 1 HER+ so they're saying chemo and lumpectomy but seem hopeful they can cure so I'm holding on to that. Still going through tests with MRI, mammograms with dye and  a 2nd area biopsy (which came back clear) but hoping to get started in next couple of weeks. They are waiting on MRI to give an accurate size before deciding if chemo or op first!

    You we're both right, the waiting was hardest but now I'm ready to fight! Just wanted to say thank you to you both and I'll keep you informed of my progress x

  • Hi, I'm sorry for your diagnosis! Could I ask you about the mastitis symptom? Did you have any red swelling on the outside of your breast? Or any painful lump? 
    I'm going through something similar myself! I have been on two rounds of antibiotics for an infection but still in pain however I never had any visible swelling etc just pain felt inside. 
    my clinic appointment is tomorrow and I'm terrified! 

  • Hi Holliejz

    Well it was a bit red but couldn't feel a lump just a burning sensation really, I did think my right breast did look a little bigger than the left but not so you'd notice. I'm so pleased I went and got it seen or who knows when I would have actually felt something! I had a weeks worth of antibiotics and still felt the sensation but to be honest it was still a shock I still thought it may be an infection!

    I know it's scary but most people find it is just an infection or a cyst and if it turns out not then your going and getting it sorted and that's the main thing!

    I had a mammogram and an ultrasound and both straight forward and we're quick. 
    Good luck and let me know how you get on xx

  • Thanks for the reply! The gp could feel a swollen infected tube shape thing when i first went and then when I went back she could feel something was hard in there. I'm just tired of feeling scared and wondering all the time, I'm just ready to get it seen to so I know what's what!