Hi, wish i was a youthful 80 even though im a young 70. When i was diagnosed feb 2016, i was being sick regularly for no reason nothing else wrong with me or so i thought, sickness turns out to be hiatus hernia (where some of the stomach comes through the diaphragm so acid higher up to normal)anyway one of the tests showed something else hence psa test (1500+)

Hormone therapy works but some side effects mostly not to bad, oh my prostate isn't enlarged quite normal apart from firm. Still living with my uninvited guest over 6 years now. 

Billy 

Hi. I am a worried wife to someone who has just recently been diagnosed with prostate Cancer which has spread to lymph nodes in his pelvis area and testicles. Gleason 4+5 

My  husband is 58 years old only sign he got was not being able to go to the toilet as usual.

Been on this roller coaster ride since September 1st this year.  I just feel like I'm not coping well with it constantly crying which is not good for me or my husband. Trying to cry in secret,  Been told to keep strong for the rest of the family it's really hard! 

Hi stress is a real problem with most people them with cancer and family and friends as well.  

It's all on the cancer pathway but mostly easier when treatment starts and they know things are getting sorted. 

If you go to the blue bar at top of your page you can open search for what you're looking for.  Or touch the avatar to open the person's notes about themselves, (some don't put notes on).

Billy 

Hi again.

Husband had MRI ten days ago. Out of the blue a phone call yesterday to make appointment for a biopsy wIth no explanation or MRI result.  My husband had made it perfectly clear at the outset that he will NOT undergo a biopsy  and the Consultant was very understanding and agreed. This call has really spooked us  as we assume it's as a result of the MRI. Have spoken to Secretary who said she will try and get someone to phone with MRI result.  When he  suggested the scans we agreed with the Consultant, that if indicated by scans the only treatment would be medication, at his age 80 and with a very turbulent few years medically my husband does not want invasive or aggressive treatment.   The Consultant said if any cancer was confined to the prostate - watchful waiting, but if outside the prostate - hormonal therapy. We're really stressed out and my husband now saying he wishes he had left well alone as all he had was a raised PSA and no symptoms whatsoever.

My Dad is 84. He was diagnosed with prostate cancer during the first covid lockdown following a PSA test in early Feb that year. He also refused a biposy but had an MRI and bone scan which showed that the cancer had spread to his bones. His only symptom was needing to get up in the night to the toilet, which he assumed normal at his age.. Treatment at his age and stage has been hormonal - a mix of injections and taking daily tablets. The only side affect has been hot flushes (for which tablets to counteract are available if required). His PSA has come down to approx 2. Given that your husband has no symptoms I would hope for a similar outcome for him (though without any spread). My Dad has been told he will die with prostrate cancer but not from it. My parents would both tell you that the stage you are at (diagnosis,tests, awaiting results) is worse than than life once treatment starts. wishing you both all the best

Hi. That is so very reassuring thank you.  The hospital seem to be quite unable to see his point of view. All we want to know is - it it contained to the prostate and if not what hormonal treatment might be available.  He has a bone scan on 12th Oct and hoping that will not be too worrying.  They seem hell bent on more aggressive treatment, which he doesn't want.   My daughters, like you, are very supportive but I'm trying to play it down to save them worrying. We are due to go on holiday in 3 weeks and hoping to know where we are by then. 

MRI PI RADS 5.  They pushing for biopsy but my husband absolutely doesn't want it.  ( see previous post as to why)   Specialist nurse said nothing worrying in pelvis  but that's all she told us  along with the RADS.  He has bone scan this week, after a lot of discussion she said if bone scan ok he will probably go back on surveillance  but if any problem he could have hormone therapy.  I'm really stressed about it all, and my daughters are worried sick. The medics seem quite affronted that he has refused a biopsy and are not helpful at all.

Hi there just to let you know you're not alone. My partner is 65 and went for a general health check and the doctor threw in a blood test psa check. It came back high 18.6 he was sent for an MRI which came back as pi rad 5 issues with lymph nodes and irregular capsule. So he's had a bone scan then 3 weeks after this a biopsy was done. It's now been a further 6 weeks and the results are later this week. I've never been off google and cancer sites. I try not to cry or get too emotional when we're together. I find myself crying in the bath or at work. Hopefully it's still treatable. The waiting and stress is unbearable at times 

Hi.

I'm so sorry you are having such a long wait for results. It's absolutely the worst stress isn't it.  I spoke to a Specialist Nurse on the Prostate Cancer UK site and she was really helpful.  We are trying to keep busy, but its so worrying.  My husband's bone scan is tomorrow and they said its not always easy to differentiate cancer in the bones to arthritis - which we know he has!! They said if not clear he would need even further tests.  We are supposed to be going on a cruise on 23rd Oct and his insurance was on the "watch & wait" scenario. I'm not sure if they will even insure him now, so am very nervous about going ,,,- thoughhe has zero symptoms.   Good luck for the results this week - I do hope it goes OK.  

One of the worst stresses yes though he's been through the mill. He has AF and diabetes he had a fall at work and damaged his spine a few years back and has recently lost his mum and dad. He's also still very upbeat he's scared but doesn't let it get him down. Me I'm on Google every chance I get and one minute I'm optimistic next I feel theres no hope. He didn't mind his bone scan its noisy but he was fairly quick because he stayed very still most people move. I hope the scan goes well and you do get your holiday. Best of luck x