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Recently diagnosed

JonesyLFC44
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Hi everyone, I'm Wayne. I'm 55 and was diagnosed with advanced bladder cancer 6 weeks ago. I'm hoping to start Chemo therapy in the coming weeks. I stumbled across this page this morning when I searched up 'what does incurable cancer mean?' It's the first positive comments I've heard since my diagnosis. The Drs and Nurses are lovely but if you don't ask the questions (like me) I think they just sssume you know... 

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    Hi there ... and welcome to our little chat room... where we all wish we didn't need, but so greatfull it's here ...  the early part of diagnoses for many is the brain swims with scary sinarios and " what ifs" we tend to only here the stories in the news of those of us that passed ... but technology has come a long way ..

    These threads pass quickly as new ones come on .. so always know you can join in other ones threads to ... I hope you have a support network of family or friends ... having a hand to hold is priceless ... l got my grade three breast cancer 5 years ago ... I've chatted to many on here sinse and lots still here to tell our journey... 

    I found it was a bit like an emotional rollercoaster... so there's lots of us on that ride with you .. times we feel positive and o.k .. times when it feels overwhelming  ... but be kind to yourself .. sometimes it's o.k not to be o.k .. it's better when we can admit some of it is scary ... 

    So I'd say, don't look to far ahead .. live in the day .. don't do what ifs ... and take each problem as and when it comes up... that's the best advice I got ... so hold on in there ... Chrissie...

  • Offline in reply to Chriss

    Hi Chrissie , thank so much for replying. The emotional rollercoaster is exactly where I'm at right now. The cancer has already spread to my lower bowel (which was the reason I went to the Dr in first place). Surgery to fix this has left me with significant abdominal injuries which will take a few more months to heal properly. It's a tough place to be right now but I'm hoping with a couple more months and treatment started I can start to feel a little more normal

  • Offline in reply to JonesyLFC44

    Hi ...

    It's a long old journey that's for sure .. that's why taking each day as it comes helps .. I remember like yesterday the day I had my masectomy... I needed tablets to calm me ... but it wasn't as bad as I'd thought .. now that scar reminds me, it gave me more time ...

    Sadly I've had a lot of family effected by different cancers the last few years .. too many .. I think it's harder watching those we love go through it ... but I felt every day was a bonus .. and I stuck two fingers up to cancer... as did the other family going through it .. I tried to keep my sense of humour through it .. which helped me through ... 

    Knowing others are doing the same is good to know wer not alone ... one day at a time ... Chrissie...

  • Offline in reply to JonesyLFC44

    Hi even the word cancer scares people put with uncurable, double scared. 

    I was diagnosed feb 2016, prostate cancer gone to lymph node's, pelvis, spine, ribs and a lung.  Uncurable for 2 years then classed as palative care i still here with my uninvited guest still positive and sure. 

    Doing my own shopping for me and my wife, she has dementia. Oh and still doing gardening although slowly now. 

    Billy 

     

  • Offline in reply to Billygoatt

    Hi Billy,

    Thanks so much for this. It's just the positive message I needed to hear. I was given a 12-18 month prognosis and I'm not willing to accept it. I'm physically low as a result of surgeries but I'm getting stronger every day.

    thanks again

    Wayne

  • Offline in reply to JonesyLFC44

    There's people i know both on here now and again one was given 6 to 9 months over 9 years ago. Other still alive over 10 There's others but they have got back to normal lives and family. 

    I myself was given max 5 ,over 6.5 years ago..we all think keeping positive and as active as possible helps. 

    Billy 

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