Hello there, I'm so sorry that you are having to cope with all of this.  My husband was finally sent home with palliative care, a so called care package and the district nurses to call on 24/7 but it was still extremely hard for us both.  So we had two half hour care people morning and night, not enough in my opinion so don't accept what they offer if you need more.  Use the district nurses, if my husband had lived for more than five days (due to catching covid in hospital) I would have learned more on how to cope.  So don't be brave, don't be stoical, take every offer of help that comes your way and ask or demand more if you are struggling.  Also the carers are there for you as well, have a shower or a cup of tea whilst they are helping him, they will also do other things for you, make a cup of tea, let you have a break, it's not just him they are there for its both of you. My surgery put me on the red list so when I telephoned it flagged up that I needed help without having to argue with the reception to get help.  So ask about that also.  The district nurses came out when he had accidents in bed, you can't do it alone, it's too dangerous, also ask for special mattresses if he is confined to bed, ask, ask, ask, whatever you think you need ask that question and someone will help you.  I hope this helps you with his coming home, my thoughts are with you both.  Carol 

Hello there, I'm so sorry that you are having to cope with all of this.  My husband was finally sent home with palliative care, a so called care package and the district nurses to call on 24/7 but it was still extremely hard for us both.  So we had two half hour care people morning and night, not enough in my opinion so don't accept what they offer if you need more.  Use the district nurses, if my husband had lived for more than five days (due to catching covid in hospital) I would have learned more on how to cope.  So don't be brave, don't be stoical, take every offer of help that comes your way and ask or demand more if you are struggling.  Also the carers are there for you as well, have a shower or a cup of tea whilst they are helping him, they will also do other things for you, make a cup of tea, let you have a break, it's not just him they are there for its both of you. My surgery put me on the red list so when I telephoned it flagged up that I needed help without having to argue with the reception to get help.  So ask about that also.  The district nurses came out when he had accidents in bed, you can't do it alone, it's too dangerous, also ask for special mattresses if he is confined to bed, ask, ask, ask, whatever you think you need ask that question and someone will help you.  I hope this helps you with his coming home, my thoughts are with you both.  Carol