Welcome to the Cancer Chat community Evie although I'm sorry to hear you're struggling to find out more about your diagnosis.
As you mention in your post, this is a rare type of cancer but I hope this information we have on our website about CMML will help. Leukaemia Care have some information about CMML as well but if you'd like to discuss this further with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.
Hopefully some of our CMML members will be along soon to share their experiences with you but do feel free to use the 'search forum' option in the purple bar above to join in on any discussions you find about CMML that are already on the forum.
Hi Evie et al I have just been diagnosed with CMML/2 and am waiting to see a consultant ( this Thursday) to find out what treatment I will be on. I have been told my myeloma is back in remission thankfully a condition I was diagnosed with in 2007. I have looked at the treatments for cmml and like you there isn’t too much information about it although what i have read is pretty scary. By the way I am 70 this year so stem cell transplant seems out of the question for me.
