I have CMML Leukaemia.

This a rare blood cancer, does anyone relate to it in some way or another, I feel lost as there is so little information really?

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  • Hi  Evie I was diagnosed with CMML March 2021

    Like you I don't know anyone with similar.

    Also feel a bit lost.

    I'm on a watch and wait program.

    When I'm researching info keep reading it's a rare form of Leukemia 

    Hope your feeling well in yourself.

  • Hi Evie et al I have just been diagnosed with CMML/2 and am waiting to see a consultant ( this Thursday) to find out what treatment I will be on. I have been told my myeloma is back in remission thankfully a condition I was diagnosed with in 2007. I have looked at the treatments for cmml and like you there isn’t too much information about it although what i have read is pretty scary. By the way I am 70 this year so stem cell transplant seems out of the question for me. 

    Regards to all Nick 

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  • Hi Evie et al I have just been diagnosed with CMML/2 and am waiting to see a consultant ( this Thursday) to find out what treatment I will be on. I have been told my myeloma is back in remission thankfully a condition I was diagnosed with in 2007. I have looked at the treatments for cmml and like you there isn’t too much information about it although what i have read is pretty scary. By the way I am 70 this year so stem cell transplant seems out of the question for me. 

    Regards to all Nick 

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