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Placental Site Trophoblast Tumour

Troph1965
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Hi,

I Have been diagnosed with Stage IV PSTT, a very rare cancer that is part of Gestational Trophoblastic Disease.  I start immunotherapy on April 4th at a hospital in London.  Just wondering if there was anyone out there who has had this diagnosis or who is going through immunotherapy?.  Apparently there are only 5 cases a year.

I have been told there is no cure and wondered also if this is classed as terminal for insurance purposes??

Shelley

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  • Welcome to the forum, Shelley.

    I'm sorry to hear that you have been diagnosed with cancer.

    While I don't recall anyone here on the forum who has been diagnosed with the same type of cancer I hope you'll soon get to chat with other members who are going through immunotherapy. On that note, there is a page from our website I wanted to share with you which covers this type of treatment and I hope this can be of some help.

    The other thing I wanted to mention is if you feel like speaking to one of our nurses to ask some questions please feel free to give them a call on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    Best wishes,

    Renata, Cancer Chat Moderator

     

Reply

  • Welcome to the forum, Shelley.

    I'm sorry to hear that you have been diagnosed with cancer.

    While I don't recall anyone here on the forum who has been diagnosed with the same type of cancer I hope you'll soon get to chat with other members who are going through immunotherapy. On that note, there is a page from our website I wanted to share with you which covers this type of treatment and I hope this can be of some help.

    The other thing I wanted to mention is if you feel like speaking to one of our nurses to ask some questions please feel free to give them a call on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    Best wishes,

    Renata, Cancer Chat Moderator

     

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