Placental Site Trophoblast Tumour

Hi,

I Have been diagnosed with Stage IV PSTT, a very rare cancer that is part of Gestational Trophoblastic Disease.  I start immunotherapy on April 4th at a hospital in London.  Just wondering if there was anyone out there who has had this diagnosis or who is going through immunotherapy?.  Apparently there are only 5 cases a year.

I have been told there is no cure and wondered also if this is classed as terminal for insurance purposes??

Shelley