Hi Jo,

Great news!, its amazing how much of a lift you get from having a plan in place. Now for u to get that PET scan out of the wy and get the treatment started!.

I also have some updates. Just got back from hospital dentist and have to have 2 teeth out, wasn't absolutely necessary but I thought I would err on the side of caution and it was better than I expected. Arrived home to a letter for my first visit to the hospital where I will be having my treatment....that is this Friday at 10am, and also just had a call for a visit from a nurse the day before my PEG fitting on the 14th.....phew!

Edging closer to claiming our lives back! I told my friends I will be buying them all t shirts saying "he beat cancer" with an arrow pointing to me for them to wear when we meet up.....they weren't impressed :laugh:

Bring it on!

Al

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Hi Jo yep I get around   

If you're really bored look on here at our thread if you look under RadioactiveRaz in the search person you'll find the thread

Radiotherapy For Throat Cancer

it will keep you amused with our ramblings whilst I and a few others were going through treatment

Hazel  

Haha thanks Hazel - interesting to read through ️

Update alert  

PET scan booked for next Thursday - i really do think they held back waiting on final biopsy result - anyhow , there must be ryhme and reason for how they function - was told to stay away from my daughter for 6 hrs after as I will be radiactive ️
 

Al, do you have stay in overnight to have your peg fitted or are you on day surgery ?

Jo

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Hi Jo,

Good news about the PET scan...when it comes back all cler it will be another big step forward. I noticed something really strange in the PET paperwork.....no knitting before the scan! :laugh:

As far as I'm aware I should be out the same day as the PEG is fitted, certainly thats what all the paperwork says....in at 10.25 and should be out 4 hours after the op around 4ish I reckon. I have a nurse visiting me the day before the op to talk about PEG care etc so will confirm it with her.

Also just found out my final ultrasound (to check the lymph nodes in the left side of my neck) will be on the 22nd.

All being well I hope to start my chemo/radio before the end of the month.

Al

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Hi Jo yes you'll be radioactive hence my name on here Radioactiveraz!  I was told not to see grandson for 12 hours and no baby's fir 24. I wasn't allowed to read look at my phone or anything for the one hour after I was inhdcted with the radioactive serum. I was in a room with nothing on the walls ti distract yiu. Now dani in other hand  could  read. No rhyme nor reason . It's fascinating watching the serum come into took in its own box with yellow skul n crossbow on it. After an hour where you have ti drink you're allowed a loo visit then intk the scanner. It's quieter than the mri ms Hines. As fir org again friends in hospital trust policy. 
thjngs are starting to move. 
Hazel x

Yes we rambled on am stil in touch with the guys as well 

hazel xx

oh my gosh ,,  I am left eating your dust , speeding off ahead of me .. lol 

Great news all round..  

you are going to be a few weeks ahead of me at this rate.. wow , I feel so worried mine just isnt moving so fast as yours ... eeek! 

Blimey 10hrs of chemo - thats is a darn long day ! are you in and out the same day  or is that an overnighter ? 

x

Hi Jo,

I'm surprisingly shocked by how fast things are moving and cannot fault the NHS. I wouldn't worry if I was you, I think I have just been lucky and I'm sure a couple of weeks won't make any difference in the grand scheme of things....... we will be comparing treatment notes very soon.

Both chemo sessions are home the same day, my daughter is taking me for the first one and and will bring her laptop so she can work whilst I'm being drugged up.....second session my girlfriend will do the same. Actually it may not be as long as 10 hours I'm not sure where I got that number from (may have read it somewhere) it was information overload yesterday :laugh:.....I do know that it is an all dayer tho but I will only stay overnight if I have a very bad reaction.

Al

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