I know how you are feeling.  I will be having a throat biospy in the coming weeks.  I was told my appt could take up to 6 week to arrive which doesnt bear thiniking about.  Every moment of the day I am lost in thought of what may lie ahead.  I feel ike I have been carved out inside... hollow  , numb and unable to communicate with others.,, people speak to me and I am not even aware,  I am so closed up inside my own head.. 

Sleeping is so hard.  I did actually download an app for mindful meditation and relaxing, which I  must admit , it did acutally distract me and send me to a better more relaxed mindset and I fell asleep to it .  Annoyingly it is only free for 28 days so looks like I may need to invest for the long time frame I know is ahead .. if my biospy takes 6 weeks and my results 2 weeks I have another 2 months of this . :neutral:

Oh my that is such a long wait. Hope you get it done sooner, it is so difficult when they find something and I feel it's the not knowing and the wait after biopsy for results is the worst, I agree you cant function or turn off no matter how much you try. I have everything crossed for you that it is quick, good news and you have a speedy recovery x 

Well a new turn of events - my stitches have come undone and I now have a hole in my soft palate - have emergency contact for ENT but no-one is picking up :neutral: 

Straight to A&E they will sort you. Good luck hun xxx

Spoke to them , they said not to worry it will heal on its own :neutral:

Hi Sue

Just wondered how you are healing up ? 

Jo

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Hi jo, I'm getting there, coughed 2 big lumps of white stuff and stitches up this morning since then the pain has eased loads and soreness is considerably less than it was which is a huge relief. How are you fairing? Hope you aren't suffering too much.

sue xxx

Wow haopy to hear this Sue , progress at last .  I have lost a few more stitches and the hole in my palate is pretty grim .  Eating is a massive challange at the moment - soups , fruit shakes and ice cream but litlerally I have to eat so slowly and the tiniest amount at a time (took me 30 minutes to eat half a cup of soup lol it was stonr cold by the time finished )  . Weight has fell off me , which scares me as I am not sure if it is anxiety , lack of food or a dreaded symptom  - that said , my weight was fine until I got referred on this trek - so  i think anxiety is burning up what little I am able to eat .  
 

I managed to see my GP yesterday as i was worried with the pain and she issued me some anitbiotics and said take them if things get worse , but what the heck I am taking them now to be sure and not waiting for anything to worsen .  Also given some anxiety medication .. took some lastnight , didnt seem to do dip lol  

When do you get to see somone again ? .. i  dont think stitches and throats are comaptible given we both seem to have had issues 

Jo

x

Aww bless you, you are going through it, it's absolutely awful. Your tablets for anxiety will probably take a couple of weeks to kick in I'm afraid, my GP is talking about putting my dosage up from 60mg to 100mg as I am not in the best of places either. Hopefully your antibiotics help and are you gargling with corsodyl mouth wash? That has helped my throat a lot. And I agree I don't think stitches are the best for your throat. I see my G  as p on Monday afternoon so fingers crossed she has a report of results there as I still haven't had my hospital appointment.

sending hugs

sue x

That was supposed to say GP!!! doh  

Oh , Monday cant come soon enough for you  I bet.  Yes, the doc gave me Diazapam, she said it was instant compared to normal medication , as you say, she said it would take some time to build up in my sytem  and I probably was best not prolonging anxiety any longer but only to take when really needed.  She wanted to try beta blockers but because I have a history of asthma that wasnt an option so my options were pretty limited to Diazepam.  I was expecting this tablet to take me to a Happy Place given what I read up on Diazapem , but think I am immune to happy places at the moment haha!

I have been using simple diluted rock salt and cooled boiled water to keep things calm in my mouth but this morning another stitch fell away when I was rinsing .  I take paracetemol and ibuprofen almost four hourly , stopped taking Codiene as it made me feel like crap tbh and unable to function and didnt seem to do anymore than para's etc.  

Keep me updated on your visit Monday .. you will certainly be in my thoughts.  Hopefully you are able to enjoy some proper food now you have cleared those stitches etc.. odd isnt that these are supposed to be dissolvable yet three weeks on you still had them stuck there, whereas mine cant wait to be gone.. 

Enjoy the remains of the weekend Sue .. I  really could do with a wine or a stiff whiskey :love: ️ 

Jo

It certainly can't come quick enough. I'm on duloxatine but they don't seem to be hitting the spot, I'm the same due to me being on inhalers and they will hopefully eventually help with my wrists and hands that are still painful and have reduced mobility in them since breaking them both 2 years ago, there's only certain meds you can take, I also can't take any anti inflammatory pills as they affect my bowel disease and codiene didn't help. 

Let's face it I'm falling apart at the min everything is going wrong with my body.

hope you are soon on the mend, I will keep you updated and you also have the best weekend you possibly can. 
Alan 

not heard from you for a few days hope all is well and you are getting positive news still.

hugs to you both

sue xx

It certainly can't come quick enough. I'm on duloxatine but they don't seem to be hitting the spot, I'm the same due to me being on inhalers and they will hopefully eventually help with my wrists and hands that are still painful and have reduced mobility in them since breaking them both 2 years ago, there's only certain meds you can take, I also can't take any anti inflammatory pills as they affect my bowel disease and codiene didn't help. 

Let's face it I'm falling apart at the min everything is going wrong with my body.

hope you are soon on the mend, I will keep you updated and you also have the best weekend you possibly can. 
Alan 

not heard from you for a few days hope all is well and you are getting positive news still.

hugs to you both

sue xx

Morning Ladies,

So sorry to hear you are both suffering. I was quite bouyed when Jo posted just after her biopsy but it appears the healing process is a long and very painful one. I have my needle biopsy on Wednesday but I hear that is relatively straightforward and painless and I should be in and out in an hour. If that comes back all clear I will be over the moon

Tongue biopsy is Monday afternoon so I have plenty of time to stress. I am taking note of all the tips on what to use to help recovery but I am also preparing myself mentally for the pain and discomfort after the op.

Hope you get some good news at the Docs today Sue, and Jo hope the healing process speeds up.

On a lighter note i have been trying to lose weight for ages so if that is a side effect of the biopsy then I'll take it :laugh:

Thinking of you both

Alan

x

Good morning Alan, 

good luck with your needle biopsy, I didn't have one so can't confirm one way or the other if it's painful, hopefully not, also good luck on Monday, I will be thinking of you and praying for a quick recovery and positive results for you.The healing has taken a lot longer than I expected but am now getting there slowly. Thank you for your good luck wishes for today, hopefully my GP will have the report from the hospital as I still have received my appointment from them. I will keep you updated once I've been.

sue x

Hi Alan

Please dont judge by my experience - i think i am one of the unlucky folk whose body rejects stitches and this happened so quick my op site was still very much a fresh wound -its called "suture spitting"  -  i have never had sttitches before so this was not foreseeble 

I am a lot better and taking antibioctics seemed to help my wound  calm down . Now eating soggy dunked biscuits - its bliss 

Lol at diet - ironically I started a keto diet at the turn of the new year  .. not that I am badly overweight but I was struggling to get into my clothes and reluctant to buy the next size up.  Well , the keto diet is out the window now . Anxiety seems to burn up calories extremely well for me  haha - I dont recommend this kind of diet though but  clothes now fit well again .. so that saved me some pennies 

I think a tongue biopsy is not that bad , the tongue heals very very quickly .  Salt water washes highly recommended for the tongue healing but avoid mouthwash with alchohol content  ..  your down time on general food should be very minimal  

AND ... Sue all the best for today I hope you get some positiive answers from you GP (keeping everything  crossed for you) 

x

I hope all went well with your GP yesterday , Sue 

Jo

x

Hi jo,

I feel a little more positive after seeing GP, there was some abnormal cells but the results were inconclusive which apparently is a positive sign. She hasn't received all the results from hospital so couldn't totally rule anything out but it's a start and a little more than I knew before I went to see her. Hopefully my appointment with consultant will arrive soon and I get confirmed answers.

hope you are starting to feel better and praying for good news for you.

hugs

sue x

Thats such great news Sue.  I was thinking lastnight that the fact they dont seem to be rushing you back in , is a positive sign , in that they dont think your condition serious and seem to be letting you now drift through the system . Hopefully you are able to eat better now ? How is the biopsy site, can you see yours ?  Was you lesion sore before you were referred by GP ? 

Sadly, I think all my stitches have now been rejected by my body but I am not in so much pain and even find I am not taking so many painkillers .   I am glad I went and got anitbiotics last week though as they did seem to reduce the inflammation hugely even though the Dr said it didnt look infected , the pain was making me question that but then most peoples stitches dont pop out  in less than 48 hrs  of an op so maybe this was what the pain was all about.   I am not tempted to try and eat anything solid until I see the wound start to close up ..its pretty weird ( and grim)  to be able to see above the roof of your mouth lol TMI  I know ... the only thng is how long it will take to heal over naturally as they took quite a lot away * shrugs  

Jo

x

Hi Sue,

At least you have some idea of where you are now, fingers crossed you get more good news going forward!

Jo

Glad to hear the biopsy site seems to be settling down now.

It sounds like you are both tough cookies and I think its fantastic that you are both remaining so positive. Its inspiring me to do the same although my throat has been very sore the last couple of days and it feels like the lump is getting bigger (probably just my imagination). Time seems to have slowed down now. I have my needle biopsy at 2pm today, I'm pretty relaxed about that at the moment but once its doen it will be another box ticked.

I just want rid of this thing now!....today in particular I'm angry at it (how stupid is that?)

Alan

x

Hi Alan

All the best for todays biospy .  I have read many who have had these tyoe of biopsies and nobody said it was a bad experience .

And yes today my mouth feels soooo much better and I  have yet to take painkillers today so that is progress for sure .  I have taken so many tablets this past week I would rattle if you pick me uo and shook me lol

I think we experience every emotion there is during these times .  The slightest thing upsets me these days and yesterday I had my first little meltdown but i think I had  been trying too hard to put a brave face on and my cork  popped .. it was needed and I am sure it wont be my last..

Treat yourself to something special after your hospital appt ..   

X

Hi Alan,

yes I feel a bit more positive now and my throat is starting to feel loads better at last, I still have the odd meltdown which is to be expected, luckily my hubby just shrugs it of and I never lose control in front of my kids or grandkids, I would hate for them to see devils daughter that comes out when I lose it .

good luck with your needle biopsy, hope it is quick and painless for you.

hugs

sue x

Hi Ladies,

Just got back from my needle biopsy......forgive the language but ******* ouch!!.....it wasnt what I expected at all....3 biopsies he took with what they call a 'punch biopsy needle' feels like someone is kicking you in the neck each time......I'm so sore now!.......what a wuss! :laugh:. as my girlfiend keeps reminding me " you want to try giving birth!"......that old chestnut! :laugh:

It wasnt what I expected at all....but hey ho its another box ticked.

Up to 10 days wait for the results now......watch this space.

I'm scared to move my neck now :laugh:

I'm off for a lie down....have a good evening both of you

Alan

x