Throat biopsy - how do you cope with wait for results?

Good afternoon, I'm new here. I'm 57 yrs old. After having a sore throat from dec last year and my GP finding a mass with lesions I was fast tracked for a throat biopsy which I had on the 17-02. From seeing my GP to seeing constant and surgery was less than 3 weeks. Now it's the awful wait for results. How do you all cope while waiting for the results? my heads in bits waiting and also has anyone else ended up with infection in biopsy site along with ulceration if so how did you help the pain. Im on antibiotics and codiene which up to now isn't working, feeling stressed out with no one to talk to.

 Thank you x

Parents
  • I know how you are feeling.  I will be having a throat biospy in the coming weeks.  I was told my appt could take up to 6 week to arrive which doesnt bear thiniking about.  Every moment of the day I am lost in thought of what may lie ahead.  I feel ike I have been carved out inside... hollow  , numb and unable to communicate with others.,, people speak to me and I am not even aware,  I am so closed up inside my own head.. 

    Sleeping is so hard.  I did actually download an app for mindful meditation and relaxing, which I  must admit , it did acutally distract me and send me to a better more relaxed mindset and I fell asleep to it .  Annoyingly it is only free for 28 days so looks like I may need to invest for the long time frame I know is ahead .. if my biospy takes 6 weeks and my results 2 weeks I have another 2 months of this . :neutral:

  • Oh my that is such a long wait. Hope you get it done sooner, it is so difficult when they find something and I feel it's the not knowing and the wait after biopsy for results is the worst, I agree you cant function or turn off no matter how much you try. I have everything crossed for you that it is quick, good news and you have a speedy recovery x 

  • Well done Jo!

    Keep me updated I'm only 2 weeks behind you 

    X

  • Absolutely I will :silly:

    Oh btw they mentioned the teeth damage to me before i went into surgery but all was okay .. I cant feel any damage - all seem to be present and intact lol 

    Jo

    x

  • Hi Alan, 

    that is excellent news about your scan, I've got everything crossed all your other test come back clear too. Glad you are feeling more positive and yes it's one step at a time. X

    sue

  • Hi jo,

    glad you have had your biopsy sooner than originally expected, make sure you rest up plenty and hope you heal quickly and your results come back clear. I'm still non the wiser as still waiting for appointment, I'm seeing my GP next week so maybe she will have an update and I can get some answers.x

    sue X

     

  • Thank you Sue 

    Cant believe you are still in the dark about your results .. that is pretty cr*p and no further forward .  How is your throat now ? I hope it is healed up nicely .    I had to have some morphine to calm pain .  I also seemed to be in surgery for a while , went in at 1:45 and came to in recovery at 4pm .. Consultant  said they were only going to go up through the palate , so thought I would be out in  not time *shrug 

     

    Keep me updated Sue and lovely to hear from you 

    Hugs

    Jo

    x

     

  • Hi jo,

    it is pretty rubbish still waiting to see constant, throat still sore, hospital prescribed some anti inflammatory spray and corsodyl mouth wash to see if they would help it heal better but up to now it's not working. My biopsy was down the right side of my throat and a small bit of the underside of my tongue, apparently it takes longer to heal as the tongue rubs against your throat when you swallow. Hope you heal quickly without any complications.

    big hugs 

    sue x

  • Thanks Sue - I am being discharged but my consutant :has left so i wont get to ask what they did - my follow up for results is 22nd .  I assume maybe they just went into soft palate where the lump is - the MRI wasnt back from Saturday yet the mri unit  is just down the corridor lol  

     

    I hope they get you sorted with pain and healing  , it has been so long for you now  

    x

  • Hi Jo/Sue,

    Sue, that sucks still not knowing. I've been impressed with the speed and effficiency of the NHS so far, having said that I would still not have had the results of my CT scan if I hadn't asked the nurse who was doing my pre bio assessment if she could check on the system. I think Doctors become so thick skinned doing this day in and day out they forget how much stress waiting and not knowing puts the patient under. I hope you have an answer soon, I have a sore throat every day which ranges from a 2 to a 5 out of 10 on the 'painometer'....its bearable but wears you down. 

    Jo, I hope you make a speedy recovery without too much pain....you would think in this day and age there would be an easier way of doing a biopsy.....I'm scared about having mine which is also at the back right of my tongue but I will get thru somehow, it so comforting to share this horrible experience and know you are not alone thank you both.

    Alan

    x

     

  • Morning Alan, yeah it is stressful not knowing, I see my GP on Monday so hopefully she will have had something sent through and can confirm what is wrong one way or another. I agree the NHS has been really quick up until the results but I think that is more down to the booking office rather than the consultants. My sore throat after biopsy is now down to around 6-7, after surgery it was off the scale. Make sure you have playoff pain killers and antiseptic mouth wash in, hopefully you won't need them.
    it does help an awful lot speaking to people going through the same thing as you, they are the ones that understand how you are feeling, thank you both so much.

    hugs sue xx

  • Hi Alan , Yes , it is always re-assuring to see others experiencing similar and realise we all share the same thoughts , fear and anxiety .   Oddy, when I went to my 2ww urgent ENT and was sat waiting , my vet (who my cats are registered with)  was there too .. I had a hunch she too was on a urgent 2ww  as she had no paperwork like me .. all people with paperwork seemed to be on a normal track appointment .  (Playing detective in waiting room lol). Anyway, when I was in day surgery recovery yesterday from my biopsy my vet walked passed too and when I was leaving I passed her just being discharged .   Seems our timings and health issues are very similar - no doubt she will be back for her results the same day as me too .( i see her clock me but being masked up she wasnt too sure if she knew me or not) 

    Before I left hospital lastnight I asked about painkillers and what to do if pain was not being controlled by paracetamol and the nurse then issued me with codiene to take home so be sure to do the same Alan..   I have several stitches to the back soft palate and a patch of palate skin has  been taken away leaving a lumpy cell like texture  .. not too grim to look at considering lol  . Tongue is bruised but  absolutely no pain , all teeth present and correct .  I had no sickness from the anaesthetic and was drinking almost immediately when I woke.  Only discomfort is when I swallow and I am sticking to soup and ice cream for meals for the next few days (planned ahead) .. I am going to get a jar of manuka honey for my tea as it is supposed to have great healing benefits , so thought it may help my wounds .  You will be fine - I am the biggest wuss there is for hospitals and my anxiety was off the scale yesterday - looking back now , I realise it was a teenie tiny hurdle and i was being my normaly anxy self unnecessarily 

    Today i am having a chill day .. on sofa with my book 

    Jo

    x

     

    ..

Reply
  • Hi Alan , Yes , it is always re-assuring to see others experiencing similar and realise we all share the same thoughts , fear and anxiety .   Oddy, when I went to my 2ww urgent ENT and was sat waiting , my vet (who my cats are registered with)  was there too .. I had a hunch she too was on a urgent 2ww  as she had no paperwork like me .. all people with paperwork seemed to be on a normal track appointment .  (Playing detective in waiting room lol). Anyway, when I was in day surgery recovery yesterday from my biopsy my vet walked passed too and when I was leaving I passed her just being discharged .   Seems our timings and health issues are very similar - no doubt she will be back for her results the same day as me too .( i see her clock me but being masked up she wasnt too sure if she knew me or not) 

    Before I left hospital lastnight I asked about painkillers and what to do if pain was not being controlled by paracetamol and the nurse then issued me with codiene to take home so be sure to do the same Alan..   I have several stitches to the back soft palate and a patch of palate skin has  been taken away leaving a lumpy cell like texture  .. not too grim to look at considering lol  . Tongue is bruised but  absolutely no pain , all teeth present and correct .  I had no sickness from the anaesthetic and was drinking almost immediately when I woke.  Only discomfort is when I swallow and I am sticking to soup and ice cream for meals for the next few days (planned ahead) .. I am going to get a jar of manuka honey for my tea as it is supposed to have great healing benefits , so thought it may help my wounds .  You will be fine - I am the biggest wuss there is for hospitals and my anxiety was off the scale yesterday - looking back now , I realise it was a teenie tiny hurdle and i was being my normaly anxy self unnecessarily 

    Today i am having a chill day .. on sofa with my book 

    Jo

    x

     

    ..

Children
  • Whatever happens we will have a hell of a story to tell when this is all done.

    So glad to hear you are home and relatively pain free Jo.

    I would like to think that I am pretty good with pain (even for a man :wink:). I have had many tooth abcesses in my life. This whole experience has already been life changing and when we do get through this nothing should ever scare us again.

    I will definitely make sure I have plenty of pain killers and get some of the strong stuff from the hospital just in case.

    have a nice chill day both of you

    Alan

    x