Mums dying and I can’t cope

My mum has recently been diagnosed with secondary lung, liver and bone cancer. They haven't found the primary cancer as yet. We're waiting for a call this week to determine what will be offered to her, if anything at all. The consultant wanted to wait to see the results of the fluid they drained from her lung (pleural effusion). We have been told it isn't cureable but may be treatable to prolong life. I'm only 26 and I don't want to lose my mum.. I have two young children, 1.5 years and 11 weeks old and it's breaking my heart to see how quickly she has went downhill. We initially thought it was a sore back and we we're getting physio for this but then she started to struggle breathing and we have been hit with this news.. honeslty I just don't know what to do or where to go because she's gotten so so so Ill very quickly and she's unable to walk long distances, she's so sore all the time and she's obviously shocked by the news.. I'm so scared because I know what's coming this week and I'm scared they will say she's not got long left. Is there anything out there for me to help process this news so I can continue being strong for her because I'm about breaking every time I look at her and that's hurting me because she doesn't want to be looked at like she's dying. 

Parents
  • Bex1994 - they might not be able to identify the primary cancer location.

    My husband was diagnosed as CUP (unknown primary) in the spring. Despite several tumours in the liver of up to 13cm and nothing else seen on scans, they decided to treat him with chemo, then immuno targeting lung cancer because that looked more likely in the biopsy results.

    It will be impossible to tell how well any treatment works until it has been tried. And maybe your mum will get a few additional years out of it! As for pain/soreness, they should be able to control that with painkillers.

    Unfortunately we have gone from initial diagnosis in March to last few weeks (at best) in just a few months, but it's not the same for everyone.

    My husband is age 70, I am "only" twice your age (will be 53 in November). My mother died a slow and painful cancer death back in Germany over several months in 2009, my father died unexpectedly in 2014. There is some advantage in sudden deaths - and my husband has said he sometimes wished he had died quickly when he went to A&E and they found clots on the lung -, however for me it's enormous relief that we had time for a few more short trips in Scotland inbetween treatment sessions and that we managed to sort through paperwork & update our wills.

    You may not be able to control the cancer and if/when it takes your mum, but you can control - to a certain extent - how you spend the time until then and to plan ahead. And take photos, plenty of photos.

Reply
  • Bex1994 - they might not be able to identify the primary cancer location.

    My husband was diagnosed as CUP (unknown primary) in the spring. Despite several tumours in the liver of up to 13cm and nothing else seen on scans, they decided to treat him with chemo, then immuno targeting lung cancer because that looked more likely in the biopsy results.

    It will be impossible to tell how well any treatment works until it has been tried. And maybe your mum will get a few additional years out of it! As for pain/soreness, they should be able to control that with painkillers.

    Unfortunately we have gone from initial diagnosis in March to last few weeks (at best) in just a few months, but it's not the same for everyone.

    My husband is age 70, I am "only" twice your age (will be 53 in November). My mother died a slow and painful cancer death back in Germany over several months in 2009, my father died unexpectedly in 2014. There is some advantage in sudden deaths - and my husband has said he sometimes wished he had died quickly when he went to A&E and they found clots on the lung -, however for me it's enormous relief that we had time for a few more short trips in Scotland inbetween treatment sessions and that we managed to sort through paperwork & update our wills.

    You may not be able to control the cancer and if/when it takes your mum, but you can control - to a certain extent - how you spend the time until then and to plan ahead. And take photos, plenty of photos.

Children
  • I am so so sorry to hear about your husband, mother and father. I honestly dont even know why I wrote this post, I suppose it seemed like some sort of escape from my reality and pray for a mirace story. 

    I know there are have been huge advancements in treatments over the years, however she has been told that it is pallative and that they will offer radiotherapy in an attempt to control the tumour on her spine that is compressing her spinal cord affecting her bowel and bladder functions and now only recently her legs have started to feel numb, however that is just to attempt to improve her quality of life..

    It feels so surreal to write that my mum will die. I know death is innevitable but I have been completely ignorant and expected her to be here for a long long time to come. Long enough to see me get married, to go on that 'last family holiday', to watch her grandchildren go off to school, academy, watch them get married and so on. 

    I guess I just dont know how to process these emotions..  There is really no reason for my post other than to air my emotions and to try not cry infront of my mum.. 

     

    Thank you everyone for your kind words. I will look into MacMillan for a chat while continuing to make the most amazing memories with my mum for however long I have left with her.

     

    Thank you all so so much xxx

     

  • Bex1994 - our oncologist told us, once the liver is affected, they always consider it "terminal" and it's palliative treatment only. That's because there isn't a range of highly effective treatments available as for some other cancers. Maybe ask the consultant about clinical trials as well?

    On a more practical note: check what benefits/grants your mum is entitled to, there's a useful section covering that topic on the Macmillan website, for example, see www.macmillan.org.uk/.../benefits-and-financial-support.