Help - due to have palliative chemo but changing my mind

My first palliative chemo on Monday, I'm scared of what side effects I might get, as I can't be cured I really don't see what benefits I might get by having this. Originally I said I wasn't having chemo but then decided to give it a go. Now my head is telling me don't do it and is fighting against having it done. I am completely consumed with this treatment and am in complete turmoil. I have stage 4 stomach ring cell cancer and presented myself beginning of 2021, had countless test all came back clear, June ended up in A&E and had emergency operation, they fitted a stoma and found the cancer. So told healthy and then short years to live. A lot to get my head around. 

  • Hi cross patch, what a great name!  It's so difficult to understand what is best isn't it?  I don't know how old you are but my husband has stage 4 lung cancer and had palliative chemotherapy, then radiotherapy and now immunotherapy and next year it will be five years since diagnosis.  He is now 75 years old.  The chemotherapy was easy to have but it does make you very tired and depending on the treatment I have no idea how you will feel.  They should have given you advice on what could happen but if you can get through it and come out the other end and it helps you to live longer which it has him, then it depends on how strong you feel about having those extra months.  I suppose you could start the treatment and see how you are feeling and then discuss it further with your care team, nothing is set in stone so it's your decision.  Lots of people on this forum to support whatever you decide to do.  We are all here in it together so use our help and experience of the unknown. Best wishes, Carol x 

  • Thank you Carol, I think I keep dithering because scared of side effects, but won't know till I have it. You are right I keep thinking try it, I can always say no after if I want to. I just don't want to be defined by cancer and don't want it taking over my life, don't like losing control. I am just scared to be honest, I am 72 and to be honest my children want me to try as no husband to support me. Glad your husband has had such a wonderful result and thank you for your reply. 

  • Let me know how you get on. Lots of help here if you're struggling. Everyone reacts differently and I'm sure you're family will be there for you. Norman is doing ok lots of ups and downs but he plods on and that makes us happy. Xx

  • Well went to have my chemo yesterday and had a complete meltdown, think I cried more then than when I was told my  cancer was terminal. The nurses were brilliant to me and made me a cup of tea to try and settle me. I was petrified before I went in and then not being able to have anyone with me (I thought Covid was on the back-burner now) didn't help.So no Chemo yet, but has been rebooked for 2 weeks, I feel so much calmer now that I think the stress and anxiety was just waiting to erupt. Have had a very helpful telephone call from one of the Specialist nurses, which really.ly he.ped with my questions and anxiety, she also said she will try and see my at mynext appointment as some support. So although the anxiety is still there to some degree, I feel more able to face what comes next. Sorry to ramble so much.

     

  • Well that's good that they were all understanding and helpful. I went with my husband but it was so busy and I was in the way so he would go alone. They are such a good team the cancer nurses and it should go better next time. The unknown is the worst so you've overcome that first hurdle!  Always here for a good rant. Carol xx