Father dying

I wish I knew where to start, my brain is so muddled. I'm 36 but never felt more like a scared little child watching my big, strong, protector... wither away to this small, frail, helpless body that once was able to hold me on its shoulders. 
My father is 72, and for most of those years he was in decent health. Type 2 diabetes at 45 and Gall bladder removal 20 years ago and a small bout of sepsis but he bounced back. He worked hard right up to the day of his retirement at 65 and had great plans for what he and my mother would do with their time, cruises, a new puppy, weekends away, it's their time! They just had to overcome a minor operation for sciatica for my father and the world was their oyster. The operation happened, the problem didn't fix, the problem turned into severe, debilitating pain and left my father unable to walk without some sort of frame and for the next few years mum had to become a carer. As if things weren't bad enough...the diabetes caused liver disease and this quickly deteriorated. From October last year my father has spent 90% of the time in hospital and he was diagnosed with liver cancer in February with no treatment available and the only thing was to keep the symptoms at bay. Rocket drain fitted for the ascites, pain medication and now necrosis and infection for diabetic foot which has meant he has spent the last 8 weeks in a side room of a short stay Ward because they have nowhere else to put him. They can't do anything for him and I have to watch this man suffer in the slowest most cruel way ever. We can't get him home, there isn't the care staff to arrange such a specialist package for the 24 hour care he needs. There isn't any hospice beds. He just lays and sleeps, wakes up and gets so angry at me and mum. Says the most awful things, closes his eyes and 30 seconds later is dad again. We are on this vicious cycle for weeks now and told that he will not make it through the night and yet he is still with us. Angry, depressed, in pain, lifeless, no dignity left and I feel such guilt for wanting to tell him to let go. I have no clue what is going on. 

I don't know how I am expected to live in a world without this man. 

  • Im so sorry to hear on your father. All i can say is just be with him at his bedside hold his hand tell him you love him speak to him. Even play him his favourite songs. Just be there. Im sure he will know you are to. I have just recently lost my father. We got told he was going to pass and he lasted another 24 hours. It just shows even near the end they still fight on even after all the horrible things they have been through. He sounds like such a fighter and will go when his ready not when the doctors tell you. Try and take comfort that he isnt alone he has you all there with him. But please make sure you eat and take care of yourself as much as that doesnt seem relevant at the time. My prays are with you all

  • Just checking how you sweetheart  keep strong lv annie x x x

  • He's still here, very shallow breathing. I went to mums to get a shower and a couple hours sleep and we are back at his bedside now. Just feels so cruel that when he should let go and be at peace, his wee body just isn't ready to let the fight be over. That's 30 hours now of being unresponsive and shallow breathing. Had the "rattle" for a good few hours yesterday until they gave him something to ease it. I expect he will pass today but it's just a waiting game. 
    I last spoke to him last Saturday and when I was leaving his room we both said I love you and he told me I was his good girl. So I can be happy that was the last words I hear from him. 

  • He’s a fighter sweetheart a dad to be proud of with a amazing daughter and family  lv annie x x

  • I don't understand. We were called in on Friday, he's been just unresponsive for days and Cheyne-Stokes breathing. Now he has suddenly woken up and asking for ice cream and capri sun, I'm so confused. I don't know what's going on?! How many times have I to be told that he's got hours left and then he's like talking about the dog and telling everyone to " *** off"

  • Same thing happened to me on my husband third round of chemotherapy he had a anphelatic shock went to hospital wasn’t allowed to go with him with Covid phoned hospital all night got phone call next morning told to go straight in I was gowned up but when a got to his side room he was sat up eating breakfast lv annie

  • Just to close this off. My father passed away today, 9 days after we were called in to the hospice. He was unresponsive for 2 days and suddenly became aware and alert for 5 days. Drinking and eating ice cream and being in awful amounts of pain that they couldn't control with patches and drivers etc. His body was just done. He was sleeping all day and now he is finally no longer suffering. 

  • So sorry but he’s at peace know take care of yourself lv annie

  • I'm very sorry to hear this Teddywoo and my thoughts are with you at this difficult time. The forum is always her for you and if you ever need to speak someone on the Cruse bereavement helpline, their number is 0808 808 1677.

    Moderator Anastasia