Dad has weeks left small cell lung cancer with brain mets

My dad was diagnosed last august with small cell lung cancer, which had spread to the spine and lymph nodes. In feb this year he was told he has multiple brain tumours. He is now unable to walk, he's at home in a hospital bed with carers coming in each day. He started being sick the day he needed the bed, but is now on anti sickness tablets so he isn't suffering with this now. He's eating less, still able to get to his commode himself but with a struggle. The nurses said he has weeks left, but I don't know if that means it could be up to 4 or more? Like when do they stop counting it as weeks and as months? Might sound silly but I want to know how long 'weeks' could mean. I mean could 6 weeks still count..? I would think of that as months though if it were that long..I've found this all such a whirlwind, dad was so strong but said to me 'I'm losing the fight now' which broke my heart. I live 4 hours away from my dad and did a visit recently which was lovely but such a mix of emotions. Really struggled to get actual quality time with him, I'm struggling to plan trips and life around this unpredictable horrible disease.

If anyone has experience with this, being told there are only weeks left and can tell me their stories I would find that helpful, I am mindful that every patient is different though as I've been told many times! 

Parents
  • Sorry I was a but rushed before with school runs, but just wanted to add I totally understand your need to plan, I am the same I have spoke to the schools and they are aware of the situation but its really hard to know when is the best time to go...and I like you would also like quality time.  I've been down twice in the last month. Once for 3 days and once for a week- I just hope we both get a chance for more quality time.  Take care of yourself too

  • Thank you so much for your reply I really appreciate it, and as much as I wish this upon nobody I'm just glad I have someone who understands..sounds like you are in such a similar position to me. I have 2 children a 2 year old and 4 year old do you find it's so hard to keep your cool some days around the children? I find myself snapping more and think I shouldn't have them alone too much at the moment. 
    It sounds like you're in a confused place with time scales etc, similar to me as well. we've been told weeks and last week dad was bed bound then suddenly today he's getting out to walk to the dinner table and eat! I can't believe it, I now almost feel as though I've planned everything wrong with work taking time off etc when nothing is actually imminent.. it's such a hard time I don't know what we are supposed to do in this situation. 
    might be easier to chat by text or something if you'd be up for that? No problem if not as we don't know each other!

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  • Thank you so much for your reply I really appreciate it, and as much as I wish this upon nobody I'm just glad I have someone who understands..sounds like you are in such a similar position to me. I have 2 children a 2 year old and 4 year old do you find it's so hard to keep your cool some days around the children? I find myself snapping more and think I shouldn't have them alone too much at the moment. 
    It sounds like you're in a confused place with time scales etc, similar to me as well. we've been told weeks and last week dad was bed bound then suddenly today he's getting out to walk to the dinner table and eat! I can't believe it, I now almost feel as though I've planned everything wrong with work taking time off etc when nothing is actually imminent.. it's such a hard time I don't know what we are supposed to do in this situation. 
    might be easier to chat by text or something if you'd be up for that? No problem if not as we don't know each other!

Children