Dad has weeks left small cell lung cancer with brain mets

My dad was diagnosed last august with small cell lung cancer, which had spread to the spine and lymph nodes. In feb this year he was told he has multiple brain tumours. He is now unable to walk, he's at home in a hospital bed with carers coming in each day. He started being sick the day he needed the bed, but is now on anti sickness tablets so he isn't suffering with this now. He's eating less, still able to get to his commode himself but with a struggle. The nurses said he has weeks left, but I don't know if that means it could be up to 4 or more? Like when do they stop counting it as weeks and as months? Might sound silly but I want to know how long 'weeks' could mean. I mean could 6 weeks still count..? I would think of that as months though if it were that long..I've found this all such a whirlwind, dad was so strong but said to me 'I'm losing the fight now' which broke my heart. I live 4 hours away from my dad and did a visit recently which was lovely but such a mix of emotions. Really struggled to get actual quality time with him, I'm struggling to plan trips and life around this unpredictable horrible disease.

If anyone has experience with this, being told there are only weeks left and can tell me their stories I would find that helpful, I am mindful that every patient is different though as I've been told many times! 

  • Hi

    I just wanted to say Im sorry you are going through this but I could have written the exact same. My dad was also diagnosed in August last year  with lung cancer that has spread throughout his body, he has been so amazingly strong throughout his entire diagnoses. He is also struggling to walk and i am also a 3 hour journey away. Im also confused with being told he has weeks, some days he has really bad days and we think this is it and some days like yesterday he has a good day and Im just hoping they are really wrong and he has a lot longer. I was told by the macmillan nurse a few short months 2 weeks ago, his partner was told 2-6 weeks. But he is still there and Im proud of his fighting spirit.  I know how you must be feeling 

  • Sorry I was a but rushed before with school runs, but just wanted to add I totally understand your need to plan, I am the same I have spoke to the schools and they are aware of the situation but its really hard to know when is the best time to go...and I like you would also like quality time.  I've been down twice in the last month. Once for 3 days and once for a week- I just hope we both get a chance for more quality time.  Take care of yourself too

  • Thank you so much for your reply I really appreciate it, and as much as I wish this upon nobody I'm just glad I have someone who understands..sounds like you are in such a similar position to me. I have 2 children a 2 year old and 4 year old do you find it's so hard to keep your cool some days around the children? I find myself snapping more and think I shouldn't have them alone too much at the moment. 
    It sounds like you're in a confused place with time scales etc, similar to me as well. we've been told weeks and last week dad was bed bound then suddenly today he's getting out to walk to the dinner table and eat! I can't believe it, I now almost feel as though I've planned everything wrong with work taking time off etc when nothing is actually imminent.. it's such a hard time I don't know what we are supposed to do in this situation. 
    might be easier to chat by text or something if you'd be up for that? No problem if not as we don't know each other!

  • I'm sorry you are going through this. I too could have written this myself. 
    my dad passed away almost 4 years ago now. Started in his lungs, but had spread to his spine, brain and there was talk of prostrate too. He was diagnosed in June 2017 after having a seizure at home, alone. I lived 4 hours away and had 3 young children. I ended up moving us all in with my in-laws that lived 30mins away from my dad. He passed away on August 4th 2017.

    my dad was fighter through and through. It was heartbreaking seeing him go from a strong man, to a weak frail shell, crying through pain and his own heartbreak.

    we both so valued those precious few weeks we had together and we became so close and bonded like we had never ever done my entire life. I was right with him right until the very end, holding his hand. Looking back there were various signs of different stanges that occurred, but he was still very mobile, getting up to the toilet, but did need a lot of help getting about. He stopped fully eating and drinking about a week before he passed and just slept 24/7. He was on mild pain meds. The Dr, Carers and nurses kept saying he wasn't "at that stage yet" and didn't need them. In my heart I knew he wasn't long until passing.

    We fought and fought to get him into a hospice, we (myself and his sister) couldn't physically cope with him anymore. He agreed to go. He passed away the next day peacefully, and finally got the pain meds he needed long before. The hospice Dr was disgusted that he had pain meds refused and actually put in a complaint!

    if you can, go and be with your dad whilst you still have a chance. Believe me, it's the only thing that got my through it all. Knowing we parted with so much love and special bond.

    xx

  • Hi

    Im sorry for what your going through.

    My dad was diagnosed with lung cancer around late Feb and at the point of diagnosis we were told he had 2 weeks left. I'm actually fact my dad stayed with us a further 6 weeks and passed away at home peacefully on 22nd April. During that time we had what I call several false alarms - to the point we thought that was it and were saying our good byes. There were days when he was really low and others when he totally perked up - it can be very up and down. Towards the end Dad was less talkative and drifted slowly out of conciousness - it's when that happens you know you are near the end. All I can say is that use this time as a gift, spend as much time together and say all those things that are important. We also lost our mother to cancer 3 years ago but the difference was it went undiagnosed and her death took us by total surprise. While no experience is any easier, all I can say as hard as it is to know your losing your loved one, simply having that time to say good bye and have as much quality time really helps with the grieving process. 
     

    I don't know if what I'm saying helps at all - just cherish every moment as you reasonably can and know that time eventually heals.

    Wishing you both strength and fortitude.

  • Hi

    Im sorry for what your going through.

    My dad was diagnosed with lung cancer around late Feb and at the point of diagnosis we were told he had 2 weeks left. I'm actually fact my dad stayed with us a further 6 weeks and passed away at home peacefully on 22nd April. During that time we had what I call several false alarms - to the point we thought that was it and were saying our good byes. There were days when he was really low and others when he totally perked up - it can be very up and down. Towards the end Dad was less talkative and drifted slowly out of conciousness - it's when that happens you know you are near the end. All I can say is that use this time as a gift, spend as much time together and say all those things that are important. We also lost our mother to cancer 3 years ago but the difference was it went undiagnosed and her death took us by total surprise. While no experience is any easier, all I can say as hard as it is to know your losing your loved one, simply having that time to say good bye and have as much quality time really helps with the grieving process. 
     

    I don't know if what I'm saying helps at all - just cherish every moment as you reasonably can and know that time eventually heals.

    Wishing you both strength and fortitude.

  • Hi sorry i didnt see your reply till now, yes i do feel a bit stressed with the kids at times. I definitely am finding having patience harder! Its very stressful though so we have to be easy on ourselves at the moment too i start crying at the drop of a hat lately, text message would be nice idea i think!

    Im very sorry for all the losses on here and will definitely take on the advice to utilise the time we have! 

  • Hi, how are you and how is your Dad? My sister has just been diagnosed with terminal stomach cancer (it's spread to other areas). Like your Dad, she has been given weeks to live. We are devastated and trying to be with her as much as possible. Similar to you I live 5 hours away and have 2 children (2 and 5). I find myself over analysing the 'few weeks' statement but it is difficult to make plans.

    So sorry to everyone who has lost a loved one. It really is heartbreaking  

  • Hi thank you so much for replying. I'm sorry to hear that you're going through a similar time, I would never wish the experience on anybody. My dad has had a very quick change in the last few days- he went from getting in a chair/the dining table to being bed bound. He had the shakes yesterday trying to use the commode then he got dizzy so the nurses said he should lie down. He told us he has pain everywhere at 5am today so he's now on morphine.. we await more nurses to come in, but I'm actually heading home to rest for a day before things really progress because this way my husband can drive me back here and then back home if this is the end. I am trying to think ahead a bit but it's very tough. I can't believe how fast this has all happened and I imagine now we are looking at days instead of weeks. 
     

  • Hi let's do that I think maybe email me then we can swap numbers?

    sending you a hug x