Days to live

Hi all 1st time poster here

Bit of a back story my mum was diagnosed with breast cancer and unfortunately it had spread, had chemo and it kept it at bay, done what it could! Recently she's been having pains in her back found out it has spread to her liver and is progressed very much and all they can do for her now is make her comfortable she didn't want to know how long she has got left but I know and they have given her days! Possibly weeks, it's now been nearly 2 weeks since her diagnosis I just don't know what to do as I know it could be any day now! How did u all cope with the "wait" I also have to keep as normal as possible because she's worried it will slip out! 

  • So sorry to hear about your mum. I am on the same boat at the moment, stomach cancer spread to liver and it's pretty advanced. Looking at the attitude of the doctors, the pain management etc. They don't give her much time... they thought that this is it on Saturday but she's still here ! Her case is due to be reviewed by multidisciplinary unit but to be honest I am preparing for the worst possible news. I guess if they come up with some plan I rather be nicely surprised than badly disappointed. 
     

    My mum was in crazy pain, it only got under control thanks to strong medication. At first she was fine, bit tired but stilL able to speak to me, today I struggled to have a chat with her. It's really heartbreaking to see her so zonked out... I don't want her to be in pain but I cannot stand looking at her being so knocked out. 
     

    For me personally nights are the worst, I am so anxious that I will receive THAT phone call in the middle of the night, it makes me physically sick. 

    I pray a lot, I know that's not for everyone, but I like to think that miracles happen and maybe with some luck it will Be us this time. I talk to her a lot even when sometimes she can't hear me. 
    I focus a lot on providing her right nutrition, enough water etc. 

    Maybe its delusional but hope dies last, and if there is a hope there is still a chance (in my opinion). 

    i tell my mum that I love her a lot, and remind her that she still Got my wedding to attend ! I want to remember her smiling, feeling content knowing that im gonna be okay. 
     

    I think there is no universal way to cope with it. I'm trying to find comfort in praying for miracle x 

  • Bless ur heart not very nice thing to go through is it, yes I also have the sick feeling constantly every time my phone goes off, gotten to my mums today and all she is doing is sleeping she can hardly walk now just waiting for the nurse to come to see what they say but I've got a felling that it's not going to be long now :( 

  • Hey [@T8421]‍ 

    I read your post, and didn't want to just read it and run, as I have been where you are now, as have many of the lovely other people of this forum. My mum passed away at 55, 3 months ago after a very short period (5 weeks) between diagnosis and her not being with us anymore. 

    The waiting, as you know, is so horrendous. The only advice I can give you is that your mum will still know you're close and with her, even if you think she's not acknowledging what you're saying so keep holding her hand and just being with her. This will honestly make her more comfortable than you know. I played music to her and just told my mum about what was going on, and she would at times, squeeze my hand, especially at times when I said I loved her, or that she could rest now, and we would be okay. 

    I'm just genuinely sorry you're going through this, and I won't lie, it is an incredibly tough journey, but your mum will leave you her strength to continue on, and as cliche as it sounds, she will always be with you. I feel my mum's love still, and I've had some very tricky days without her.  

    If you ever want a chat, just let me know. But I'm sending you lots of love and strength for the coming days, weeks and months. It may seem like you won't be okay, but your mum will make sure you are. Take care of yourself XXX

  • Thank you both so much for replying, we've had the nurse in today and it's not good news she's not got long left at all we are talking hours! She's very sleepy and very confused, it's just a waiting game now, but I'm trying to be strong for her husband and my little sister and brother. Thx again for replying [@Newlife101][@Patsy12345]‍ 

  • So sorry to hear about your mum we are going through exactly the same it's heartbreaking my mum will be getting the syringe driver tomorrow it's awful thinking about it but like yourself I'm just trying to make her as comfortable as she can be she only 56 xxx

  • Bless you no not a nice thing to go through haven't needed syringe driver as yet but we know it's an option, mines 53 also lost my nan to throat cancer at 56 so 50s really aren't a good age for us! At the moment she's very confused and disorientated and not really making much sense at the moment either. Very hard to see her like this :(

  • Hi 

    I'm so so sorry this is a really awful time 

    The anxiety of not knowing and how you will cope is overwhelming

    My thoughts are with you 

    Marie xx

  • [@Gradon][@T8421]‍ 

    Sending lots of love, and strength to you both. Thinking of you xxx

  • Thank you means a lot I find this group really helpful I no nothing prepares you for what's in front it's just the thought of been without my mam the only real comfort I take from all this is knowing she will be with my brother he died in 2018 on turkey he was only 29 xxx