My Dad is stage 4 and is having palliative Chemo

Hi I'm on hear because my Dad was diagnosed with stomach cancer but they caught it too late & it has spread to his spleen, pancreas & more worryingly in his spine so he might loose the use of his legs because the cancer is near vital nerves. My Dad has had radio on his spine & is receiving chemotherapy for the rest of his body. What is really worrying me that after every chemo session he is getting weaker & is sleeping all the time & the steroids don't work anymore so just feels sick all the time. He is not eating anymore & has recently started to refuse liquids. He won't even drink tea or water. I'm really worried that he is only suffering & not receiving proper palliative care. Both my sister's are living with him because they care for my Mum too, who is also really ill too. I feel like I'm at loggerheads with sister's because I am saying, Dad is only suffering and you need to ring Christies or McMillan for help and advice. My sister's are trying their best but I think they are in over their heads now. Should I step in & start ringing round because my Dad has no quality of life now. Has anyone been through the same situation or have any advice about trying to hydrate my Dad. Please any advice would be greatly appreciated. Thank you.

Parents
  • I'm sorry that your Dad is going through this.my mum was diagnosed last week before she was diagnosed she had stopped eating. We called the ambulance and the roller coaster started.last week the doctors told my mum while on her own that she had stomach cancer and was going to die,well that's how she put it.she should never of been told while alone on a ward .it messed with her head .when she came out of hospital still not eating and then refused fluids said it made her feel sick.we have tried everything. She has always been a coffee drinker with milk but she wouldn't drink it. So we tried black coffee which she nows drinks some and we also use dhyerlite which she drinks about 400mls.her tastes have changed and no longer likes sweet things. It might be worth offering your dad tea without milk.maybe it's the smell .who knows we have just started this journey and due to the weight loss she can't have chemotherapy they say till she builds her body up .which is hard when she won't eat.i feel your pain and helplessness you are going through. It's so hard seeing someone you love go through this .they have given my mum anti sick pills which seem to be helping as before the 400mls she had a week on just a sip here and there.i pray they can give her chemotherapy. I will pray for you and your dad. X

  • Sorry to hear about your mum . My dad is 55 and has just been diagnosed he was told alone aswell. Also at hospital while we didn't know why he was so ill a nurse had ask us if he was already having chemotherapy! Obviously to our shock and horror asked her what on earth is she talking about!  She said sorry my mistake!next day we are told he has terminal cancer . But the doctor told my dad alone ! No one should be told alone I think it's absolutely disgusting . 

  • Hi Gem ,I'm sorry you and your dad also found out this way .totally shocking I think once they know you have cancer you should have a macmillian nurse come and see you right away. It may have saved my mum going into the dark place .we are trying hard to get her out of now.yep I feel like a nag lol drink please try and eat something.they say they can't operate and it will be only chemotherapy if she puts weight on.hopefully tomorrow after seeing the macmillian doctor it could make her feel positive. I hope now you also are getting help from the macmillian? If not get them on board.take care and keep in touch when u can 

    X

Reply
  • Hi Gem ,I'm sorry you and your dad also found out this way .totally shocking I think once they know you have cancer you should have a macmillian nurse come and see you right away. It may have saved my mum going into the dark place .we are trying hard to get her out of now.yep I feel like a nag lol drink please try and eat something.they say they can't operate and it will be only chemotherapy if she puts weight on.hopefully tomorrow after seeing the macmillian doctor it could make her feel positive. I hope now you also are getting help from the macmillian? If not get them on board.take care and keep in touch when u can 

    X

Children
No Data