Mum has terminal lung cancer

Hi everyone, this is my first post here. Not something I wanted to do but this is where I am. My mum was diagnosed with Lung Cancer back in January. She has always been super fit before that. The only sig. We had was she coughed up a little blood and then things snowballed from there. It turned out she had Metastatic Kidney Cancer and now Some small tumours in the brain. She has been managing ok but things seem to be getting worse. She had Srs radiotherapy for her brain mets and that seemed to go ok. We are about 1 and a half weeks later now and she is really struggling. Constantly tired and struggling to get around like she did. She says she's constantly tired and has a lot of aching on her right hand side.

She's not in any pain now we got the medication sorted but I'm constantly worried. I'm hoping she will pick back up again. She had a patch before where she was constantly tired and she came back round to be more active. I'm worried out of my mind that she will keep declining. Could this tiredness be down to the brain radiotherapy. She seemed ok when she had it but she was on steroids. The doctor said 6-9 months then 9-12 if they can get control of the cancer. She is supposed to be having radiotherapy for her lung but I'm not sure what will happen with her feeling weaker. She wasn't so bad only a few days ago and now she is very tired again. I just don't know how to cope with losing my mum. She's my life and I will be lost without her. I've been living with her at home for the past 18 years due to my own illness. We are so close and it feels like my world is falling apart. I know other people go through this but I am struggling. This is the hardest thing I will ever have to do. Muly mum is 65, she still feels so young to me. Thank you for reading. 

  • Hi Mich, I'm so sorry to hear you are going though this, it's so tough and you do feel helpless at times. I hope your dad is feeling a little better now and the infection has cleared up. My mum had a similar thing were she needed blood infusions as she had hyper Calcimia. It did help her feel a little better. She has passed away now unfortunately but thank you for the kind words. I hope your dad continues to improve and you get him home soon. I wish you all the best.

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    Hi Simon,

    Thank you for this update. Your dad must be disappointed that he has another 3 months to wait. We are still struggling with hubby's medication and, he had a nasty fall tonight. Fortunately, he doesn't seem to have broken anything, but I reckogn that he'll be stiffer and sorer than usual for a few days. We go off on Tuesday, so it's all very exciting.

    I am still hopeful that your dad's treatment has been effective.

    Regards,

    Jolamine xx

  • Hi Jolamine, oh no I'm sorry to hear that. I hope he is doing ok and he feels better soon. Yes it is quite a bit of a wait, we expected it to be a few months but it will end up being longer than we thought. Thank you Jolamine! I hope you have a great time in Italy! Take care x

    Simon

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    Hi Simon,

    I haven't heard from you for a while, so I'm just touching base to see how you're both doing. I hope that all is well.

    Regards,

    Jolamine xx.

  • Hi Jolamine how are you. I hope your holiday went well me you had a good time! How is your husband doing?

    It's not been going very well recently. My dad was getting more and more tired and after convincing him he eventually rang the doctors. He's aenamic so we thought he would be needing a blood transfusion. He has had this before. After a doctor came round they decided to take him to hospital. While they were checking they found out that the cancer has now moved to his liver. They gave him 4 blood transfusions while there but they also said to him it wasn't looking good. They said they can't give any more treatment and with all his other problems going on he has 3 months left best case scenario. He is having trouble with his kidneys and he has high fluid levels. He has managed to come home but we have had to put a hospital bed in the back room as he's not able to get up the stairs as easily now. They have set up new carers 4 times a day. These carers are much better than the last ones though. We knew he was getting more and more I'll but it's always a shock when you hear the news. How have you been doing Jolamine, I hope everything is going ok. x
    Simon

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    HI Simon,

    We enjoyed our holiday and the wedding went well. Unfortunately, it rained every day, except the day of the wedding, so we were very lucky.

    I am so sorry to hear this news about your dad. You've unfortunately been here before and know what this means - I'm sure that you're dreading the next few months.

    I am glad to hear that you have managed to get your dad a hosital bed and that his new carers are a big improvment on his last ones.

    We are fine thank you - still struggling with hubby's many failing health problems, but otherwise ok.

    I'm always here if you want to talk.

    Kind regards,

    Jolamine xx

  • Hi Jolamine, I'm glad you had a good time. That's a shame about all the rain but at least it was fine for the important day! Im sorry to hear about your husbands problems. I know it can feel like a constant battle, my dad has been the same really. Yes I do have a rough idea what to expect after my mum, I know every case is different but I'm not looking forward to it. Then I'm thinking about when he's gone I will be on my own. I know there's too much to worry about though, for now I have to concentrate on my dad and getting though this. 
    Yes they are much better which does help a lot, my dad likes them which is also a bonus as he's happy for them to help. It makes it a lot easier. 
    Thank you Jolamine, that means a lot. I do hope your husband manages to get more comfortable. The clocks are back now aren't they, the dark nights and miserable weather don't help do they! You take care Jolamine and I hope your husband feels better. X

    Simon

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    Hi Simon,

    There's so much for you to think about. Having carers that your dad likes should make things a lot easier. We certainly found this with my mother-in-law. Will you be ok to live on your own, or will you have to make other arrangements?

    First things first, your dad has to be your priority for now. There is certainly a big difference in the amount of daylight now. I'm still trying to tidy up my garden and between the frequent rain and dark nights, it's not easy.

    I'm here any time you want to chat.

    Jolamine xx

  • Hi Jolamine, yes the weather hasn't been great recently has it. It's getting colder now! I'm not a big fan of it going dark so early, the days feel really short. 
    Yeah there is a lot to think about, I think I will be ok on my own but it will really depend on the finances. The house was originally for a family so it's quite big for one person but I don't think I will want to move anywhere fast when he does pass away. As you said though I need to take one thing at a time. I need to get through this first and worry about that later. Thank you so much Jolamine, I really appreciate that. I hope your husband is doing ok. X

    Simon

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    Hi Simon,

    There are so many decisions to be made, but prioritise them and take one thing at a time. Hubby is slowly deteriorating, but he has given us some laughs too - It's a sad situation, but if you don't laugh, you cry.

    I agree, I hate these shorter days and darker nights too. I was meant to hibernate for 3 months from this time of year!

    Jolamine xx