Mum has terminal lung cancer

Hi everyone, this is my first post here. Not something I wanted to do but this is where I am. My mum was diagnosed with Lung Cancer back in January. She has always been super fit before that. The only sig. We had was she coughed up a little blood and then things snowballed from there. It turned out she had Metastatic Kidney Cancer and now Some small tumours in the brain. She has been managing ok but things seem to be getting worse. She had Srs radiotherapy for her brain mets and that seemed to go ok. We are about 1 and a half weeks later now and she is really struggling. Constantly tired and struggling to get around like she did. She says she's constantly tired and has a lot of aching on her right hand side.

She's not in any pain now we got the medication sorted but I'm constantly worried. I'm hoping she will pick back up again. She had a patch before where she was constantly tired and she came back round to be more active. I'm worried out of my mind that she will keep declining. Could this tiredness be down to the brain radiotherapy. She seemed ok when she had it but she was on steroids. The doctor said 6-9 months then 9-12 if they can get control of the cancer. She is supposed to be having radiotherapy for her lung but I'm not sure what will happen with her feeling weaker. She wasn't so bad only a few days ago and now she is very tired again. I just don't know how to cope with losing my mum. She's my life and I will be lost without her. I've been living with her at home for the past 18 years due to my own illness. We are so close and it feels like my world is falling apart. I know other people go through this but I am struggling. This is the hardest thing I will ever have to do. Muly mum is 65, she still feels so young to me. Thank you for reading. 

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  • Hi I am only 44 but battling BC 2017 and sec lungs and brain cancer since 2019 and brain 2010.I had chemo and radiotherapy which doesn't helped my right hand so last month I have to give up the job.I asked to be transferred to another hospital because I feel they don't with stage 4 cancer patients nothing just dump them.if I were you I would try new opinions.i have lung and brain scan so the new hospital will see the results.your mum is still young you needed to fight for her.

    Denisa 

  • Hi Denisa, so sorry to hear you are going through this. I'm not sure there's much I can do. She regularly sees the oncologist, district nurses and macmillan who are all supportive but it's the constant not knowing. I wake up every day worrying how she will be today. I keep hoping she will bounce back and find some more energy but I know that might not happen. I think once you get a timeline in your head you imagine thats how long you will get. I know time lines are rough but it feels like a nightmare you can never get out of. Thank you for your reply and I hope everything goes well at the new hospital.

    Simon

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