Hello Jules,

Looks like you have had quite a daunting experience for nearly 3 years now with yet another round of Chemotherapy with several usual difficult side effects particularly bloating and diarrhoea.

I relate to all that you are going through as my wife often suffered with all these side effects during nine months of two types of Chemotherapy treatment. It was a never ending battle to balance treatment of the cancer and it’s side effects (which in turn have their own side effects) Morphine or Paracetamol  for pain relief usually caused constipation then a laxative like Laxido for constipation brought on more diarrhoea followed by a drug like Loperamide to stop the diarrhoea. As you said it is all extremely exhausting and stressful.

It was good advice from the moderator’s reply to get in touch with the professional people about your concerns, as all of us who are going/gone through these treatments/side effects will have varying issues and outcomes.

I suggest you make an urgent appointment with your Oncology Consultant  to talk over your prognosis and major concerns that you said you have at the end of your message.

Best Wishes,

Colin

Hello Jules,

Looks like you have had quite a daunting experience for nearly 3 years now with yet another round of Chemotherapy with several usual difficult side effects particularly bloating and diarrhoea.

I relate to all that you are going through as my wife often suffered with all these side effects during nine months of two types of Chemotherapy treatment. It was a never ending battle to balance treatment of the cancer and it’s side effects (which in turn have their own side effects) Morphine or Paracetamol  for pain relief usually caused constipation then a laxative like Laxido for constipation brought on more diarrhoea followed by a drug like Loperamide to stop the diarrhoea. As you said it is all extremely exhausting and stressful.

It was good advice from the moderator’s reply to get in touch with the professional people about your concerns, as all of us who are going/gone through these treatments/side effects will have varying issues and outcomes.

I suggest you make an urgent appointment with your Oncology Consultant  to talk over your prognosis and major concerns that you said you have at the end of your message.

Best Wishes,

Colin

Hi Colin,

thank you for your comment it helps to know that I'm not alone in the type and severity of side effects I'm experiencing.

My Oncologist has now decided not to give me treatment this week and I have an appointment to see him on the 20th April, apparently to discuss my options and come up with a plan, this has been relayed to me by one of the oncology nurses.

im now quite worried as it sounds like they may not want to give me any more chemo. My diarrhoea was severe this time but I was sure they would try and manage it with loperamide or something but it seems maybe not. They are concerned that my kidneys will be affected by the diarrhoea but my bloods yesterday showed they were still ok, so now I'm confused and worried as this was the only treatment available to me to help prolong life. I guess I'll just have to wait and see!

it's so disappointing as I didn't have these side effects with the 6 cycles of the same treatment I had last year.

To top it all of half of one of my teeth has fell out and I'm in pain with that. It could be that I have to go into hospital to have the tooth out as it can't be done at a dentist surgery due to the chemo and steroids I have been on. It really never ends!

im keeping my fingers crossed that this will all pass and I can get back on track

jules