Struggling with Chemo 3rd time around!

Hi There

i was initially diagnosed with anal cancer in August 2018. I quickly underwent radiotherapy and chemotherapy treatment lasting about 6 weeks which was not pleasant but more from the radiotherapy really.

I was given all clear in April 19 and then following a scan in Dec 2019 I was told the cancer had spread through my bloodstream to my lungs so stage 4 terminal.

I did 6 cycles of paclataxil and carboplatin which I dealt with fairly well. The tumours shrunk by 50% so above expectations and I decided to give my body a break in August 2020.

by Jan 2021 the tumours advanced again so I started another course of chemo at the end of Feb 2021. However this time I'm really struggling with the side effects on top of usual nausea and fatigue, lack of taste etc the worst is now severe bloating and unbearable diarrhoea which is exhausting. I'm recovering today after a bout last night immediately after my chemo.

does anyone else have experience of worsening side effects after more than one round of treatment? I'm really questioning whether it's worth carrying on and whether I should have a few happy months with my family rather than suffering for the same inevitable outcome?

 

jules

Parents
  • Hello Jules, 

    I am so sorry to hear about these strong chemotherapy side effects you have experienced recently. It does sound really tough and I hope you have now recovered from that awful night. I hope you will hear from some of our members who have had side effects similar to the ones you describe and that they will have some good tips for you to help you overcome them. There is an interesting section on our website on chemotherapy side effects which you can find here. 

    I think it would be a good idea to get in touch with your nurse or your doctor to let them know how severe these side effects are and whether they have any suggestions for you to help you alleviate your suffering. I am sure that they will be able to help you minimize the diarrhoea for example and any other side effect that you find difficult to bear.  Poor you, it really doesn't sound easy and I hope that you can get some good relief from these terrible side effects soon. 

    Feel free to get in touch with our cancer nurses too who may well have some good additional advice for you on this. You can ring them on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm (except this Monday as they are closed for Easter)

    Best wishes, 

    Lucie, Cancer Chat Moderator

Reply
  • Hello Jules, 

    I am so sorry to hear about these strong chemotherapy side effects you have experienced recently. It does sound really tough and I hope you have now recovered from that awful night. I hope you will hear from some of our members who have had side effects similar to the ones you describe and that they will have some good tips for you to help you overcome them. There is an interesting section on our website on chemotherapy side effects which you can find here. 

    I think it would be a good idea to get in touch with your nurse or your doctor to let them know how severe these side effects are and whether they have any suggestions for you to help you alleviate your suffering. I am sure that they will be able to help you minimize the diarrhoea for example and any other side effect that you find difficult to bear.  Poor you, it really doesn't sound easy and I hope that you can get some good relief from these terrible side effects soon. 

    Feel free to get in touch with our cancer nurses too who may well have some good additional advice for you on this. You can ring them on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm (except this Monday as they are closed for Easter)

    Best wishes, 

    Lucie, Cancer Chat Moderator

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