palliative nurses?

My dad has just been diagnosed with terminal bowel/bladder cancer with weeks left ,and we cant have a mcmillan nurse so have a palliative nurse weve had to push her to come out to meet dad (total ppe) to which the doctor had already asked mum about his dying wishes over the phone that nurse should have asked her (mum was taken aback and shocked) then dr asked if nurse had spoken to us about counselling -no . on the meeting my sister thought i was going to lamp her as she wanted to rip up my dads second respect form as she wrote on the spare one (its still my dads   :angry: . and asking about if she was there to emothionally support us ,she went off on a tanggent , I just wanted to know what other peoples palliative nures are like and how ofhen they come out, Dad has been at home since the 4.5 .20 . 

  • We have had McMillan in our area but tbh they are just as bad, not interested at all in my mums care or support for the family. We've had the same nurse since October & she's seen mum twice. Complete waste of time. Can not understand how people rave about McMillan.

  • :-( Im so sorry youve had that experience like me especially with mcmillan as like you all ive heard is people rave about them plus when i phoned their support line i had a very possitive experience .  

     How saddening ,i just feel for you and and your mum at this time as its rubbish ( much stronger word in my head) I hope you are keeping safe x 

  • Hi, have you thought about Marie curie alot of people think there better than macmillan. You might be able to get straight in touch if not though your Dr,. 

    Macmillan are getting a bad name lately especially on the forum when patients aren't treated properly or not at all. 

    Hope you get something sorted. Good luck and best wishes. 

    Billy 

  • Hi thankyou ,we were told marie curie arent available in our area  thats why weve ended up with this palliative nurse we are in the black hole for this situation for everything.  

  • My Father in law was diagnosed with terminal advanced bowel cancer spread to his liver on 18/4/20. He wants to stay with us to the end however long this will be? We have no idea. 
    It was only a week for the Macmillan nurse to contact us and she followed her telephone chat a week later with a FaceTime chat so that she could put a face to our father, this would help her to notice any changes in the future. Dad didn't want to FaceTime so we played it casually and after the chat he said she was really nice. He doesn't want to talk about cancer or death or what will happen to him so the thought of Macmillan scares him. Her name is Lisa and she has made a difference (I think) just knowing we can call her any time, we were informed from day one and with no surprise given the present day situation with Covid that resources are extremely stretched. They are working very hard in our area and we are extremely grateful to have had the contact, this has given us some comfort  just knowing as and when dad deteriorates we will get the support he needs.

    i can't imagine how you are feeling not having someone in palliative care giving you the much needed support at this awful time. My thoughts are with you.