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End of life GBM 4

rachWBA
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My mum's glioblastoma has regrown and spread following surgery in March, followed by the standard radio & chemo, then subsequent chemo. Treatment has now stopped and she has been told she has 'short months'- this was middle November. I just wanted to ask what I should start to expect. I know everybody is different but I have absolutely no idea- mum's started to get a bit more forgetful of small things, and she can't get up the stairs anymore. She's not bed bound but can't get around much at all as she's got blood clots in her lungs which make her really breathless. The consultant said she will probably start to get a bit less 'there' cognitively, but I am really anxious on how she's going to be. I'm terrified she'll forget who I am or start getting angry at me or something. It's so heartbreaking, she's only 53 and is my whole world. Realistically I think January and February are going to be hell. She'll be going back to the hospice in which she worked for 30 years when the time is right which I think is really special- I'm hoping she's treated as a guest of honour! :p
 

Sending lots of love this Christmas time xxx

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    Hi, I had to respond to your post. We thought my mum had 6 months after being diagnosed with the same tumour as your mum. Unfortunately she too had clots in her lungs. We were so worried about dealing with the months of caring for her, if only we knew that we only had a week. She died suddenly from the clots in her lungs, we were shocked but she didn't suffer the months we thought she had. 

    I don't want to upset you but please make the most of each day, life can change in the blink of an eye. Find time to make memories and talk. I take great comfort in knowing that the short time we had with mum being poorly was in a weird way the best of times. We still laughed, cried and lived. I asked medical professionals constantly what would happen near the end but the tumour was over taken by the clots. If only we knew we wouldn't have stressed so much about how it would happen.

    Sending you a heartfelt hug, take things a day at a time and be kind to yourself. xx

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    i hope she gets treated as a guest of honour as she deserves it nothing more nothing less.

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    Hello. 

    My dad was diagnosed 25/11, and was due to start palliative chemo 2/1 but unfortunately got admitted to hospital 30/12 and had a seizure. He’s remained there on end of life care, and having his steroids, morphine, and medazalam via a syringe driver as he’s unable to swallow. Initially he was very agitated and restless but now He’s very sleepy and slipping in and out of consciousness. I don’t think he’s in any pain. We aren’t sure if he knows if we are there or not, but doesn’t respond to seeing us, or one of our dogs who we took to visit. He deteriorated so quickly. It’s such a horribly awful diesease. Xx

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