My mum's glioblastoma has regrown and spread following surgery in March, followed by the standard radio & chemo, then subsequent chemo. Treatment has now stopped and she has been told she has 'short months'- this was middle November. I just wanted to ask what I should start to expect. I know everybody is different but I have absolutely no idea- mum's started to get a bit more forgetful of small things, and she can't get up the stairs anymore. She's not bed bound but can't get around much at all as she's got blood clots in her lungs which make her really breathless. The consultant said she will probably start to get a bit less 'there' cognitively, but I am really anxious on how she's going to be. I'm terrified she'll forget who I am or start getting angry at me or something. It's so heartbreaking, she's only 53 and is my whole world. Realistically I think January and February are going to be hell. She'll be going back to the hospice in which she worked for 30 years when the time is right which I think is really special- I'm hoping she's treated as a guest of honour! :p
Sending lots of love this Christmas time xxx