Oesophagus cancer, unable to treat

After 3 weeks from being diagnosed with oesophagus cancer 5th December 2019 I was told yesterday 19th December it is to late for an operation, the lymph nodes are large surrounded by a large tumor and the cancer has spread to the liver, what next ? I attend a pet - CT scan tomorrow 21st December 2019 with radioactive fluid injection then the consultant will phone me Monday night after their meeting or Tuesday morning to try and work out how long I have or what happens now going forward, all I have been offered is a stent to help me swallow food.

My head is so confused how can my life change so much in 3 weeks, this living alone with no family or friends just my dogs is making it more confusing.

  • I have now had my first palative chemo, got home about 5pm I drove myself home 22 miles but I will not do it again and most certainly not in the dark, a taxi next time.

    I have what I suppose side effects ? But nothing serious I don't think, a sore throat pain but not too bad up from where the chemo was applied tingling in finger's eyes aching but that is most likely for being stupid driving home in the dark with a lot of on coming traffic with lights blazing, a stiff neck.

    I am having an early night and hoping for my mother's death certificate to be ready in the morning so I can get that worry sorted , hopefully releasing a little more stress from me so I at last concentrate on getting myself well, I consider myself a strong person but this last week as been more than I can cope with.

    I am getting through with your support, the hospice and now Macmillan.

    A sincere thanks to you all.

    Alanm

  • Hi alen just a quick note don't forget there is hospital transport, you might have to wait a bit but its free no fuel cost. Door to door. If you want a partner (helper) might be worth advertising on here cancer scares people people who have been through it understand. If she's rich all the better?? Remember you don't feel side effects straight away could be days before it starts on you, hope you have mild ones, good luck. And sorry your having problems getting your mum settled. Best wishes......... Billy 

  • Good morning billy,

    Jumped out of bed and did my normal glass of cold fridge water, I should have known what to expect because of the feeling in my hands when I picked up the glass, bang that water hit the mouth and throat like Niagara falls, just taken my steroids now reaching for the chemo tablets.

    I am so hoping today I can get at least some of my mum's affairs sorted, this may sound a little cruel but I just want this and the funeral behind me allowing me time for myself to tackle the palative chemo and make plans for my future.

    If I am confused about any side effects that may come, so long as they are not considered dangerous I will ask on hear, one thing I will say I have just managed to eat without pain - I have had a slice of lightly browned toast with honey - what a treat , will I be able to eat lunch time a bag of fish and chips looking over the beach out to sea ? .

     

  • Hello Alan

     

    Wondering how you are after your chemo? Did you enjoy fish & chips? The hardest thing for my husband is his loss of taste. After his first chemo he felt nauseous but not everyone does. 

     

    Best wishes

    Ronnie

  • I am not feeling good, very weak and feeling sick hungry but when I start to eat , can eat very little I feel completely exhausted what with chemotherapy and my mothers funeral, finances and personal items to sort out, maybe after the funeral on the 18th February I may feel a little less under pressure.

    I am going to the doctor in the morning if I can get an appointment, I need help to handle all that is going on, I can not cope and it doesn't help having no family or friends near, this is a bad time to be living alone.

    I am now in bed hoping for some sleep so I will say goodnight.

    Thank you for thinking of me.

     

  • Hi again alen just noticed [@Bubbles11]‍ is looking for someone to talk to. You've nothing to loose good luck.... Billy 

  • Hi Billy

    just noticed this

    good luck with your chemo. ive found the last 5 rounds pretty rough but you sound much braver than i am , i hope it goes well for you next round

    bubbles

  • Hi Alan

     

    Haven't heard from you for a while and wondering how things are for you nowadays?

    I hope your Mum's funeral went well and the doctor and hospice have helped you.

     

    best wishes

    Ronnie

  • Hi AlanM 

    How are you doing mate , everybody on here hopes you are ok after your chemo ?

  • It varies from day to day on how busy it is. 1st time I went it was quiet. Everyone was either knitting, reading, snoozing or just generally chilling out. I prefer it quiet actually. When its busier I sometimes overhear depressing conversations. I bring earphones to avoid this. Tho some people do find it beneficial to talk to others about their cancers. Each to their own