Thank Billy,

Yes I am looking forward to Tuesday it's a good atmosphere in the hospice, plenty of laughter and I have never had so many hugs as I have these last few weeks, they are still trying to get me involved in the choir trying to tell me I can just come and watch the first time, you can't kid a kidder - I am not that nieve once there they would get me up, that said once I started wailing they would see why I am avoiding.

I have been reading the notes given me by the oncologist about the chemotherapy I am having, the notes are a bit scary, be better once I have been once and know people and the chemo suite layout.

Take care Billy, Alan

Hi AlanM

Good to hear you that your experience today was a good one . And so sorry about your mum , my dad was on the same Chemo regime , he had one Chemo session then the pills at home for 5 days , he went totally downhill and straight to the hospice where he lasted 9 days before his death .

I hope you last longer and yes i wish he could have gone to the chi and Reiki as anything to keep him alive .

This is an evil disease and i wish you further good luck with your chemo and your hospice activities  , they really are the best people .

Thanks mikkey71,

Your poor dad really went through it, to start chemotherapy and after only 5 days to go down hill like that is so sad he was lucky to have a son like you who cared so much about him.

I have no idea how long I will last just like so many others on here, it's one day at a time but I have to try and give myself more time to do my duty as my mothers son.

I thank you for your good wishes, I think I am going to need all the support I can get from you people on cancer chat when my chemotherapy starts, I will report my progress and be pleased to take any advice that is helpful.

I would like to hope my experiences when it starts may give you some clarity in how your dad coped with this sick evil sh*t.

I welcome any questions from you and any advice you may think will help me make it further than your poor dad will be gratefully received.

Take care mate 

Evening AlanM

Thank you very much , yes my dad broke my heart , we lived in the same house with him for 45 years in London .

This *** disease i detest and you have my deepest sympathy as i know what your going through  , i genuinely hope ypu dont suffer like my dad did as i do not wish that on any person . 

Keep positive and your strong and a good son to your poor mum too. Your going through hell at the moment and i hope the chemo works for you and you get some relief from this . And ask me anything regarding this evil .

Cheers mate 

Thanks I appreciate your offer to help and fully understand what you have also gone through after watching my mum go from being loving and caring to a person who can not even leave her bed, feed herself or even reconise people she once loved, she can't talk or even lift her head - I know your pain mentally and physically.

Well that's me for today now hoping for a good night's sleep for a change, Life

Hi AlanM

I can empathise with everything you have written,  I lost my mum to breast cancer in september and everyday since has felt like an alternate reality. I wasnt impressed with the treatment she receieved from the NHS, and I dont think the way you have been treated is out of the ordinary sadly.

Even my uncle who has terminal lung cancer had to wait 5 weeks after diagnosis before an appointment with an oncologist.

From reading your posts I can really sense how much you are crying out for help. All I can say is you are not alone many people out there are suffering. 

When my mum was dying with cancer it felt like everyone else was getting along just fine in life and it was only me and her in pain and it was such a hellish position to be in. 

Anyway I just want to say good luck, there are people out there such as on this forum who understand what you are going through. Keep fighting and dont give into despair.  

I made my mum adopt a very low carbohydrate diet when she was initially diagnosed and im convinced it did help although she eventually stopped following the diet.  Everything is worth a try

my Mum also had a good response from Immunotherapy its worth asking your oncologist if that is an option for you. Ask your oncologist about all treatments available and dont be afraid to investigate the treatments yourself online. 

Kindle, thank you for your input giving support and advice.

So sorry to hear about your mum, we never stop on here having to say those word's but they are sincerely meant.

I have not yet looked at diets due to the oesophagus cancer I am struggling jto eat and mostly living on soups, Weetabix made very milky things like that, I take it carbs are foods like bread, it would choke me to eat bread causing vomiting and pain.

I will look into immunotherapy.

Regards Alan

Hello Alan

I have read all your posts and am glad to see you are getting more support now.

My husband was diagnosed with oesophageal cancer in October and at that time he could only eat soups and milky Weetabix. His first two chemo treatments made him very nauseous and gave him a very sore mouth. Then they reduced the dose to 80% and he tolerates this much better. He had chemo on 24 January and ,has slept and dozed ever since Sunday. Today he felt a bit better and we walked up to town in the sunshine but he was exhausted when we got home. 

The chemo has certainly shrunk the tumour as my husband is able to eat almost normally now but he says nothing has any taste. He seems a bit down in the dumps so I think ranting is definitely better.

I have wondered what the long term future holds and have been comforted by your words about the support offered by the hospice. We have a local hospice and it is good to know help is available when we need it.

Lots of luck with your treatment.

Ronnie

Hi Alan, glad you've got some people with same problems as you to talk to talk to now, i know it helps. Best of luck with new treatment, hope you can keep driving, it is possible to get free transport to and from hospital if you check think its LASLor something like that, incase your not very good.. Best wishes....... Billy